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For people with Down syndrome, family members, caregivers and professionals.

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Non-Discrimination in Medical Treatment for COVID-19

Author: Adult Down Syndrome Center - Resource List

Reports of potential discrimination in medical treatment for individuals with intellectual and developmental disabilities have caused fear, anxiety, and anger within the Down syndrome community. Depar

Coronavirus: What Is It and What Can I Do?

Author: The Arc Maryland and Maryland Developmental Disabilities Council

This document describes coronavirus (COVID-19) and steps we can take to keep ourselves and others safe.

Let's Talk about the Coronavirus [COVID-19]

Author: Center for Autism and Related Disabilities (CARD) - University of Miami-Nova Southeastern University (UM-NSU)

The video below uses a drawn whiteboard technique to tell a social narrative about the novel coronavirus (COVID-19). It was developed by the University of Miami-Nova Southeastern University Center for

Staying Connected to Your Health Care Provider During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Advocate Aurora Health

In light of the COVID-19 pandemic, many healthcare organizations - including ours - are encouraging patients to avoid coming to clinics and hospitals (when possible and if appropriate). Video appointm

COVID-19 Resources

Author: Adult Down Syndrome Center - Resource List

Many organizations are compiling COVID-19 resource lists. We have included links to some of them below.  The amount of information about COVID-19 can be overwhelming and can cause anxiety and

Work Recommendations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED JULY 2020: Additional information related to this topic can be found in our resource " Returning to School or Work in Fall 2020 ." UPDATED JUNE 2020: Additional information r

Work and Activity Considerations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED JULY 2020: Additional information related to this topic can be found in our resource " Returning to School or Work in Fall 2020 ." UPDATED JUNE 2020: Additional information r

Travel Considerations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED APRIL 2021: Additional information related to this topic can be found in our resource " Travel after COVID-19 Vaccination ." UPDATED JUNE 2020: Additional information related

Catatonia in Down Syndrome: Systematic Approach to Diagnosis, Treatment and Outcome Assessment Based on a Case Series of Seven Patients

Author: Miles, Takahashi, Muckerman, Nowell, Ithman - Neuropsychiatric Disease and Treatment - 2019

Abstract Objective:  The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-

Seizures in People with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about seizures in a person with Down syndrome who developed Alzheimer’s disease. The individual continued to experience seizures despite being treated with l

Seizures

Author: Aashima Ghai, DO - Family Medicine Resident, Adult Down Syndrome Center

Definition: Seizures are waves of abnormal electrical activity in the brain. The brain has multiple nerve cells that create and receive electrical impulses which help the cells communicate with each o

Steps to Accessing Adult Services and Supports

Author: Grace O’Connor and Ann Garcia - Patient Advocates, Adult Down Syndrome Center

While special education services are an entitlement, adult services are based on eligibility and availability of funding. If you are eligible and funding is available, services can be accessed. In the

Psychogenic Non-Epileptic Seizures or Fake Seizures

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We periodically get asked questions about “fake seizures.” They have also been called “pseudo-seizures” but are now more accurately called non-epileptic seizure

Strokes and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Strokes occur when the blood supply to the brain is compromised, which deprives the brain of needed oxygen and glucose. Strokes can be caused by atherosclerotic disease (a disease in which the inside

Startle Reflex and Myoclonus

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were asked a question about increased “startle reflex” in a 30-year-old. Please note: The information below is for educational purposes only and is not intended to serve as a su

Neurobehavioral Disorders in Children, Adolescents, and Young Adults with Down Syndrome

Author: Capone et al. - American Journal of Medical Genetics Part C (2006)

Abstract: The term dual-diagnosis refers to a person with mental retardation and psychiatric disorder. Most children with Down syndrome (DS) do not have a psychiatric or neurobehavioral disorder. Curr

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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