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For people with Down syndrome, family members, caregivers and professionals.
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Abstract We determined the extent to which obstructive sleep apnea (OSA) is associated with increased cerebrovascular disease and amyloid burden, and the relation of the two processes across clinical
Abstract Importance Patients with Down syndrome have a high incidence of persistent obstructive sleep apnea (OSA) and limited treatment options. Upper airway hypoglossal stimulatio
This visual handout explains what we need to do to take care of our bodies.
Vitamin B12 deficiency is an issue that we often check for in individuals who receive medical care at the Adult Down Syndrome Center. We usually get enough vitamin B12 from the foods we eat. Vitamin B
The video below is a recording of a webinar presented by Dr. Michael Layland on November 8, 2021. Dr. Layland is an otolaryngologist at the Ear Nose & Throat Center and Advocate Lutheran Gener
This document includes a template and images that individuals with Down syndrome and their families can use to create a bedtime routine visual.
A common recommendation we give to individuals with Down syndrome who come to our clinic is to drink more fluids. Many people with Down syndrome we see are at least mildly dehydrated
Dressing can be difficult for some individuals with Down syndrome, in part because bilateral coordination and dexterity skills can be challenging for many individuals with Down syndrome. I ha
This handout can be used to mark off how much water you drink each day.
Weight management can be challenging. It is likely that part of the reason is that there are factors for which our understanding is limited. While a great deal has been learned, more research is being
Night terrors (or sleep terrors) are described as a sudden arousal from sleep associated with sitting up in bed, intense fear, and a piercing scream. Symptoms include increased heart rate, increased r
Managing portion sizes of foods can be challenging for people with and without Down syndrome. Below are some products that may help with portion control. Many of these products can be found at retaile
This handout uses a stoplight to help individuals with Down syndrome know what drinks to consume everyday (green), sometimes (yellow), and on special occasions (red).
This handout uses a stoplight to help individuals with Down syndrome know what foods to eat everyday (green), sometimes (yellow), and on special occasions (red).
Abstract: Sleep disorders, despite being very frequent in adults with Down syndrome (DS), are often overlooked due to a lack of awareness by families and physicians and the absence of specific clinica
Abstract Individuals with Down syndrome (DS) have an increased risk for epilepsy during the whole lifespan, but especially after age 40 years. The increase in the number of individuals with DS living
The webinar below was hosted by the Down Syndrome Association of Los Angeles. The topic was "Stroke and Vascular Disease in Down Syndrome: How to Identify and Prevent." The presenter
This visual shows steps to take to have a healthy pace for eating. Take a bite, put the fork down, chew 5-10 times, swallow the food, take a small drink, pick up your fork and start all over.
We received the following question: I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i
Bathing and showering may be difficult for some individuals with Down syndrome for many reasons. Below are a variety of adaptive strategies and equipment to promote safety and independence with this s
Some families have shared with us that washing and rinsing hair can be a challenging task for their loved ones with Down syndrome. We have compiled a list of suggestions from families for mak
Tourette syndrome (TS) is a hereditary, chronic neuromuscular condition consisting of motor and vocal tics. Tics are sudden, involuntary, brief, repetitive movements and vocalizations. Motor
We frequently receive questions about sleep. Individuals with Down syndrome and/or their families report that they have difficulty falling asleep or staying asleep. In this article, we will share stra
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.