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For people with Down syndrome, family members, caregivers and professionals.

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Post-Secondary Transition Resources

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Ann Garcia and Grace O'Connor, patient advocates at the Adult Down Syndrome Center. Some of these resources are specific to Illinois residents - they are

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Health Care Transition Resources

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

The resources below can be used by individuals with Down syndrome, their families and caregivers, and their health care providers during the transition from pediatric to adult health care.  G

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Erin's Tips for Living a Healthy Lifestyle Video

Author: Adult Down Syndrome Center - Video

In the video below, Erin shares tips for living a healthy lifestyle. As Erin says, "Living a healthy lifestyle can be really hard," but her tips can help make it easier! 

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Hunger and Satiety in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Leptin is a hormone that contributes to appetite regulation and satiety. There is some data that show that individuals with Down syndrome have increased leptin levels which correlates with higher rate

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Basic Recipes Using a Microwave

Author: Kylee's Kitchen - Down Syndrome Association of Central Oklahoma

Find recipes for healthy meals that can be made using your microwave! Kylee's Kitchen is a program through the Down Syndrome Association of Central Oklahoma. Participants learn basic cooking s

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Catatonia in Down Syndrome: Systematic Approach to Diagnosis, Treatment and Outcome Assessment Based on a Case Series of Seven Patients

Author: Miles et al. - Neuropsychiatric Disease and Treatment (2019)

Abstract Objective:  The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-

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Attention-Deficit/Hyperactivity Disorder in Individuals with Down Syndrome Video

Author: Joseph Pereira - Harvard Medical School, MassGeneral Hospital for Children

The video below was narrated and presented by Joseph Pereira, a 4th year medical student at Harvard Medical School, as part of his work with the MGH Down Syndrome Program . He shares information about

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Healthy Eating Visual

Author: Adult Down Syndrome Center

This is a visual to encourage healthy eating habits.

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Serving Sizes Handout

Author: Adult Down Syndrome Center

This is a visual support that corresponds to the video on Serving Sizes. It shows you how to estimate serving sizes using your hand as a guide.

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Protein Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Protein video in the Cooking Well and Feeling Well at the Adult Down Syndrome Center series.

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Grains Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Grains video in the Cooking Well and Feeling Well at the Adult Down Syndrome Center series.

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Healthy Eating at Buffets Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Healthy Eating at Buffets video featuring Tyler and Carly.

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Healthy Food and Drink Choices Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Healthy Choices video featuring Molly and Peter.

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Healthy Pace for Eating Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Healthy Pace for Eating video featuring Julia.

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Dairy Handout

Author: Adult Down Syndrome Center

This is a visual that pairs with the Dairy video in the Cooking Well and Feeling Well at the Adult Down Syndrome Center series.

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Fruits and Vegetables Handout

Author: Adult Down Syndrome Center

Visual support based on the Fruits and Vegetables video in the Cooking Well and Feeling Well at the Adult Down Syndrome Center series.

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What to Drink Instead of Pop/Soda

Author: Adult Down Syndrome Center

This visual suggests alternatives to pop/soda.

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Employment Resources

Author: Grace O’Connor and Ann Garcia - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Grace O’Connor and Ann Garcia, patient advocates at the Adult Down Syndrome Center. Some of these resources are specific to the greater Chicagoland are

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College and Vocational Training Resources

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Grace O’Connor and Ann Garcia, patient advocates at the Adult Down Syndrome Center. Some of these resources are specific to the greater Chicagoland are

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Seizures in People with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about seizures in a person with Down syndrome who developed Alzheimer’s disease. The individual continued to experience seizures despite being treated with l

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Alternatives to Workshops

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

Some of these resources are specific to the greater Chicagoland area and/or Illinois. If you are looking for resources in another region, we recommend reaching out to a local Down syndrome parent orga

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Visual Recipes

Author: Anna Moyer - Accessible Chef

The website linked below provides visual recipes and other resources to help individuals with intellectual and developmental disabilities cook basic meals and snacks. In addition to offering a collect

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Seizures

Author: Aashima Ghai, DO - Family Medicine Resident, Adult Down Syndrome Center

Definition: Seizures are waves of abnormal electrical activity in the brain. The brain has multiple nerve cells that create and receive electrical impulses which help the cells communicate with each o

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Trisomy 21 Toolkit for Transitioning to Adult Medical Care

Author: Children's Hospital of Philadelphia - Trisomy 21 Toolkit for Transitioning to Adult Medical Care

The Trisomy 21 Toolkit for Transitioning to Adult Medical Care outlines steps individuals with Down syndrome or other intellectual disabilities can take toward building independence, planning for the

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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