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For people with Down syndrome, family members, caregivers and professionals.

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Attention Deficit/Hyperactivity Disorder (AD/HD)

Author: Brian Chicoine, MD, and Dennis McGuire, PhD, LCSW - Adult Down Syndrome Center

*This article was adapted from  Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges, 2nd Edition . What is attention-deficit/hyperactivi

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Diabetes and Obesity in Down Syndrome Across the Lifespan: A Retrospective Cohort Study Using U.K. Electronic Health Records

Author: Aslam et al. - Diabetes Care

Abstract Objective:  Down syndrome (DS) is the most common form of chromosomal trisomy. Genetic factors in DS may increase the risk for diabetes. This study aimed to determine whether DS is a

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Drinking a Glass of Water Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist

We often encourage individuals with Down syndrome who come to our clinic to drink more water. This recommendation can be interpreted in different ways. One individual with Down syndrome who heard this

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Medications for Weight Loss

Author: Brian Chicoine, MD - "Ask Dr. Chicoine" LuMind IDSC Foundation

The parent of an individual with Down syndrome asked a question about medications to treat obesity in a person who has not been significantly successful with diet and exercise despite many efforts. I

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Tips for Staying Hydrated

Author: Adult Down Syndrome Center - Resource List

A common recommendation we give to individuals with Down syndrome who come to our clinic is to drink more fluids. Many people with Down syndrome we see are at least mildly dehydrated

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Guides to Healthy Eating and Drinking

Author: Adult Down Syndrome Center - Visual

Guide to Healthy Eating Green Light: Eat Everyday These foods have lots of vitamins and nutrients. Many are  naturally  gluten free. Examples: fruits, vegetables, grilled chicken, fi

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Epilepsy in Down Syndrome: A Highly Prevalent Comorbidity

Author: Altuna, Gimenez, & Fortea - Journal of Clinical Medicine (2021)

Abstract Individuals with Down syndrome (DS) have an increased risk for epilepsy during the whole lifespan, but especially after age 40 years. The increase in the number of individuals with DS living

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Stroke and Vascular Disease in Down Syndrome Webinar Recording

Author: Jonathan Santoro, MD - Director of Neuroimmunology and Demyelinating Disorders Program at Children's Hospital Los Angeles, Assistant Professor of Neurology at the Keck School of Medicine at the University of Southern California

The webinar below was hosted by the Down Syndrome Association of Los Angeles. The topic was "Stroke and Vascular Disease in Down Syndrome: How to Identify and Prevent." The presenter

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Healthy Pace for Eating Visual

Author: Adult Down Syndrome Center - Visual

Healthy Pace for Eating Visual   Healthy Pace for Eating To be healthy and enjoy my food, I should... Take a bite. Put the fork down. Chew 5 to 10 times. Swallow the food. Take a small drink.

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Tourette Syndrome and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Tourette syndrome (TS) is a hereditary, chronic neuromuscular condition consisting of motor and vocal tics. Tics are sudden, involuntary, brief, repetitive movements and vocalizations.* Motor tics can

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Low Carb Diets

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about low carb diets.  I am looking for information on helping my 28-year-old daughter with Down syndrome lose some weight. We both started a low carb diet a couple wee

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Tips for Eating Healthy Meals

Author: Adult Down Syndrome Center - Visual

Tips for Eating Healthy Meals Eat fruits and vegetables with every meal. Starting your meal with a salad is a good way to do this. Or fill half your plate with fruits and vegetables. Eat whole grains.

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Staying Hydrated Visual

Author: Adult Down Syndrome Center - Visual

Staying Hydrated This visual explains why it is important to stay hydrated.    Staying Hydrated Drinking water is important! It is good for your skin. It is good for your teeth. It h

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Drinking Water Visual

Author: Adult Down Syndrome Center - Visual

Drinking Water Drinking water helps you stay healthy! Each day you should drink... 2 large water bottles (32 oz. water bottle) OR 4 regular water bottles (16 oz. water bottle) OR  8 cups of w

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Post-Secondary Transition Resources

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Ann Garcia and Grace O'Connor, patient advocates at the Adult Down Syndrome Center. Some of these resources are specific to Illinois residents - they are

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Health Care Transition Resources

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

The resources below can be used by individuals with Down syndrome, their families and caregivers, and their health care providers during the transition from pediatric to adult health care.  G

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Hunger and Satiety in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Leptin is a hormone that contributes to appetite regulation and satiety. There is some data that show that individuals with Down syndrome have increased leptin levels which correlates with higher rate

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Catatonia in Down Syndrome: Systematic Approach to Diagnosis, Treatment and Outcome Assessment Based on a Case Series of Seven Patients

Author: Miles et al. - Neuropsychiatric Disease and Treatment

Abstract Objective:  The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-

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Attention-Deficit/Hyperactivity Disorder in Individuals with Down Syndrome Video

Author: Joseph Pereira - Harvard Medical School, MassGeneral Hospital for Children

The video below was narrated and presented by Joseph Pereira, a 4th year medical student at Harvard Medical School, as part of his work with the MGH Down Syndrome Program . He shares information about

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Serving Sizes Visual

Author: Adult Down Syndrome Center - Visual

Serving Sizes   Serving Sizes A serving is an amount of food and tells us how much to eat. It is healthy to eat many different foods and to eat the right serving size! Proteins are foods like

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Visuals About the Food Groups

Author: Adult Down Syndrome Center - Visuals

Eating a variety of foods helps us stay healthy! The visuals below explain 4 types of foods:  Fruits and vegetables Grains Protein Dairy   Fruits and vegetables   G

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What to Drink Instead of Pop/Soda

Author: Adult Down Syndrome Center - Visual

What to Drink Instead of Pop/Soda   Find more handouts in our  Tips for Staying Hydrated  resource. 

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Seizures in People with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about seizures in a person with Down syndrome who developed Alzheimer’s disease. The individual continued to experience seizures despite being treated with l

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Seizures

Author: Aashima Ghai, DO - Family Medicine, Adult Down Syndrome Center

Definition: Seizures are waves of abnormal electrical activity in the brain. The brain has multiple nerve cells that create and receive electrical impulses which help the cells communicate with each o

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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