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For people with Down syndrome, family members, caregivers and professionals.

Duration: 12 ms, Number of Results: 47

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Supporting Healthy Sexuality for Your Loved One with Down Syndrome Webinar Recording (6/15/2022)

Author: Katie Frank, PhD, OTR/L - North Carolina Down Syndrome Virtual Speaker Series

On June 15, 2022, the North Carolina Down Syndrome Alliance hosted a webinar called "Supporting Healthy Sexuality for Your Loved One with Down Syndrome" presented by Katie Frank, PhD

Story About Body Changes for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains how our bodies change as we get older.

Story About Grooming/Hygiene for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

Story About Grooming/Hygiene for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

Story About Privacy - Female

Author: Adult Down Syndrome Center

This social story talks about privacy using pictures appropriate for women.

Story About Body Changes for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains how our bodies change as we get older.

Story About Privacy - Male

Author: Adult Down Syndrome Center

This social story talks about privacy using pictures appropriate for men.

Story About Consent

Author: Katie Frank, PhD, OTR/L

This visual handout explains what consent is and why it is important in relationships.

Menopause in Women with Down Syndrome

Author: Hannah Graham, MD - Adult Down Syndrome Center

What is menopause? Menopause is the point in a woman’s life when she no longer has menstrual cycles. It typically occurs when a woman is in her late 40s to 50s and is diagnosed afte

Common Symptoms Associated with Menstruation (Periods)

Author: Hannah Graham, MD - Adult Down Syndrome Center

Many women with Down syndrome experience symptoms associated with their period. When those symptoms are consistent or more severe, women are sometimes diagnosed with premenstrual syndrome (PMS) or pre

PMS and PMDD in Women with Down Syndrome

Author: Hannah Graham, MD - Adult Down Syndrome Center

Premenstrual syndrome (PMS) and premenstrual dysphoric disorder (PMDD) are psychological and physical symptoms which are related to hormone changes that occur during a woman's menstrual cycle.

Birth Control in Women with Down Syndrome

Author: Hannah Graham, MD - Adult Down Syndrome Center

Birth control encompasses a wide range of strategies and medications used to prevent pregnancy. Besides preventing pregnancy, some of the medications may be used to treat other common symptoms of mens

Story About When to Change My Pad

Author: Katie Frank, PhD, OTR/L

This visual explains that women need to change their pad throughout the day when they have their period.

Story About How to Change My Pad

Author: Katie Frank, PhD, OTR/L

This visual explains how to change a pad when a woman has her period.

Story About Getting My Period

Author: Katie Frank, PhD, OTR/L

This visual explains what happens when a woman gets her period.

Menstrual Hygiene

Author: Katie Frank, PhD, OTR/L and Hannah Graham, MD - Adult Down Syndrome Center

One topic that comes up frequently at the Adult Down Syndrome Center is menstrual hygiene. Women with Down syndrome and their caregivers often ask us about strategies to make periods easier or even to

Stories About Masturbation

Author: Katie Frank, PhD,OTR/L - Occupational Therapist, Adult Down Syndrome Center

The social stories below explain what masturbation is for males and females. Tap or click on the images to view the visuals. There are options for lighter and darker skin tones.  Story About

Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Recommendations for breast cancer screening have varied over time and continue to vary . Organizations have different recommendations for when women should start being screened for breast cancer and h

Epilepsy in Down Syndrome: A Highly Prevalent Comorbidity

Author: Altuna, Gimenez, & Fortea - Journal of Clinical Medicine (2021)

Abstract Individuals with Down syndrome (DS) have an increased risk for epilepsy during the whole lifespan, but especially after age 40 years. The increase in the number of individuals with DS living

Stroke and Vascular Disease in Down Syndrome Webinar Recording

Author: Jonathan Santoro, MD - Director of Neuroimmunology and Demyelinating Disorders Program at Children's Hospital Los Angeles, Assistant Professor of Neurology at the Keck School of Medicine at the University of Southern California

The webinar below was hosted by the Down Syndrome Association of Los Angeles. The topic was "Stroke and Vascular Disease in Down Syndrome: How to Identify and Prevent." The presenter

Conversation Skills in Romantic Relationships

Author: Adult Down Syndrome Center

Learn why conversation skills are important in romantic relationships.

Handling Rejection

Author: Adult Down Syndrome Center

This visual talks about what rejection is, gives examples of rejection, and provides ways to handle rejection.

Parents as Primary Sexuality Educators for Adolescents and Adults With Down Syndrome

Author: Frank & Sandman - American Journal of Sexuality Education (2021)

Abstract Limited research exists on the effectiveness of in-person workshops to help parents talk about sexuality. This study utilizes a parallel mixed methods design to examine the impact of the&

Breaking Up

Author: Adult Down Syndrome Center

This handout discusses when and how to end romantic relationships.

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