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For people with Down syndrome, family members, caregivers and professionals.

Duration: 20 ms, Number of Results: 105

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When Staff Members Leave Story

Author: Abby Rowley, LCSW, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

When Staff Members Leave   This visual story explains why staff members may leave their job, how we might feel, and how to cope with the change. Additional visuals are available in the&nb

Promoting Mental Health Throughout the Lifespan Webinar Recording (2/21/2024)

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Title:  Promoting Mental Health Throughout the Lifespan for Individuals with Down Syndrome Date:  February 21, 2024 Presenter:  Abby Rowley, LCSW Host Organization: &nbs

Pneumonia in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Lungs are vital organs in the movement of oxygen into the body and the removal of carbon dioxide. Pneumonia is an infection of the lungs. Pneumonia is more common in people with Down syndro

Tremors in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Tremors are repetitive involuntary movements. Tremors can be mild and cause limited disruption or more severe and restricting. There are many causes for tremors. An evaluation by a health p

Coping with Grief Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visual below explains how we might feel when someone we care about dies and shares things we can do to help us cope.    Coping with Grief       &nb

When a Pet Dies Visual

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

This visual explains what happens when a pet dies and how it might make us feel. When a Pet Dies     Other visuals are available in the Grief and Loss section of our Resource Library

Common Mental Health Disorders and Cognitive Decline in a Longitudinal Down Syndrome Cohort

Author: Idris et al. - BJPsych Open (2023)

Abstract Background:  Down syndrome is the most common genetic cause of intellectual disability and Alzheimer's disease. In the general population, common mental disorders (CMDs), inc

Psychotherapy for Individuals with Down Syndrome

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Key Points Some people with Down syndrome benefit from psychotherapy. Therapists work with individuals with a variety of skills, needs, and goals. Psychotherapy is often one part of a treatment plan t

Grief and Loss Podcast Episodes

Author: Rose Reif, LCMHC, CRC, BC-TMH - Multiple Organizations

Rose Reif, a licensed clinical mental health counselor, certified rehabilitation counselor, and qualified developmental disability and mental health professional, has been featured on two podcast epis

Behavior Change

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Any and all behavior change should be viewed as a possible communication tool. For some people with Down syndrome (DS), like some without DS, a behavior change may be a form of communication. This is

Gastroesophageal Reflux Disease

Author: Allison Schnitzler, MD and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Gastroesophageal reflux disease (GERD) is also known as heartburn or reflux. GERD is common in people with Down syndrome (DS). There are a variety of things that can be done at home to redu

Celiac Disease

Author: Robert Campbell, DO and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Celiac disease is caused by a sensitivity to gluten. It is more common in people with Down syndrome. It can be diagnosed through an assessment including a history, physical, blood work, and

Incidence and Clinical Outcomes of Pneumonia in Persons with Down Syndrome in the United States

Author: Janoff et al. - Vaccine (2023)

Abstract Background:  Persons with Down syndrome (DS) experience an increased risk of pneumonia. We determined the incidence and outcomes of pneumonia and relationship to underlying comorbidi

Evaluating Challenging Behaviors in Adults with Down Syndrome

Author: Down Syndrome Medical Interest Group - USA - DS-ASD Workgroup

Evaluating Challenging Behaviors in Adults with Down Syndrome    is a resource for health care professionals developed by the Down Syndrome-Autism Spectrum Disorder Workgroup of the

Staff Turnover

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

For people living in a group home or participating in day programs, the staff members often become like family. This is especially true if the person does not have other family involved in his life bu

Psychogenic Non-Epileptic Seizures or Fake Seizures

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We periodically get asked questions about “fake seizures.” They have also been called “pseudo-seizures” but are now more accurately called non-epileptic seizure

Opposite Actions

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

When we experience an emotion, there is often a behavioral urge that comes along with it. When we feel angry, we may have the urge to yell or break things or hurt someone. When we feel sad, we may hav

Calming vs. Coping Strategies

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

What is the difference between calming and coping strategies? Many times, we use the terms "calming" and "coping" interchangeably. There is often overlap in the str

Reframing our Thoughts

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Reframing our thoughts is a strategy to change the way we think about a situation, person, or relationship. Sometimes, we can get stuck in thought patterns that negatively impact our mood and behavior

Resources on Healthy Ways to Manage Stress

Author: Adult Down Syndrome Center - Resource List

Learning how to manage our stress in healthy ways is a lifelong process. We have compiled a list of resources below that may help people with and without Down syndrome who are workin

Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

Fear of Heights

Author: Brian Chicoine, MD and Abby Rowley, LCSW - Adult Down Syndrome Center

We have seen people with Down syndrome with a variety of phobias. Concern about heights is one we see more commonly. For this fear in particular, we often ask if it is indeed a phobia or if it is caus

Contingency Maps

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Contingency maps can help an individual visualize their behavioral choices and the outcomes/consequences of their behaviors. They can help make the problem-solving process more concrete. The individua

Automatic Negative Thoughts (ANTs)

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The handouts linked below were developed to teach individuals with Down syndrome how to think more positively. If an individual has an automatic negative thought (or ANT), they can squish it or brush

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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