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A Change in Behavior in a Person with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

A change in behavior is often noted in people with Down syndrome (DS) who have Alzheimer’s disease (AD). For some individuals, this is a natural part of the progression of AD. However, for o

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Regression in Down Syndrome Support Group

Author: Eileen Quinn, MD - Moderator

The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl

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Finding a Mental Health Professional

Author: Adult Down Syndrome Center - Resource

How can I find a therapist, psychiatrist, or other mental health professional with experience working with individuals with Down syndrome? Here are a few suggestions.  Contact a Down syndrome

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Tips for Navigating the Holidays

Author: Shana Sexton, LCSW and Brittany Anderson, LCSW - Social Workers, Adult Down Syndrome Center

It's the holiday season which means many people are busy decorating, baking cookies, shopping and planning family celebrations. With that said, it can also bring about significant changes in r

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Tips for Being Physically Active Video

Author: Adult Down Syndrome Center - Video

It is important to be active and exercise. It helps us be strong and healthy! In this video, Jenny and Kathy share tips for being active, including ways we can be active and how to make exercising mor

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Compression Socks for People with Down Syndrome

Author: Sarah Mann, PT, DPT, MBA, NSCA-CPT and Brian Chicoine, MD - Mann Method PT and Fitness and Adult Down Syndrome Center

Key Points Many people with Down syndrome have increased lower leg and foot swelling. People with Down syndrome appear to have varicose veins more commonly than people without Down syndrome. 

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Use of Visual Supports

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

When I was trying to figure out how I was going to share information about visual supports, I came across someone who used the following poem (author unknown) to describe what it feels like when visua

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Pneumococcal Vaccines

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

What is pneumococcal disease?  Pneumococcal disease is caused by  Streptococcus pneumoniae  bacteria. It is a leading cause of vaccine-preventable illness and death in the U

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Healthy Aging in Adults with Down Syndrome Webinar Recording (10/24/2024)

Author: Brian Chicoine, MD and Hannah Graham, MD - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, and Hannah Graham, MD, on October 24, 2024. Description:  Individuals with Down syndrome are living longer and hea

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Enhancing Women's Health: Key Insights from the Primary Care Provider's Guide to Women's Health and Down Syndrome Webinar Recording (10/08/2024)

Author: Hannah Graham, MD - National Down Syndrome Society Webinar

Title:  Enhancing Women's Health: Key Insights from the Primary Care Provider's Guide to Women's Health and Down Syndrome  Date:  October 8, 2024 Pre

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Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome Virtual Forum (9/26/2024)

Author: Brian Chicoine, MD, Seth Keller, MD, and Amy Kolb-Tucker - Stanford University School of Medicine, the Stanford Alzheimer's Disease Research Center, and National Task Group for Intellectual Disabilities and Dementia Practices

On September 26, 2024, a virtual forum on Alzheimer's disease and Down syndrome was held. Title:  Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome: Opp

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Voting Resources

Author: Adult Down Syndrome Center - Resource List

General Voting Resources Your Voice, Your Vote, Your Future Webinar   National Down Syndrome Congress Webinar recording   Voting Resources   National Down Syndrome Society I

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How to Show I Am Calm Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below explain what we can do to show that we are calm. There are versions with and without checkboxes. The version with checkboxes can be used as part of a reward system (e.g., if t

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Nutrition and Hydration Apps

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

There are numerous factors to consider when deciding what to eat and drink including nutritional content, dietary restrictions and allergies, convenience, cost, and taste preferences. The apps listed

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Preparing for Camp and Beyond Webinar Recording (8/29/2024)

Author: Hannah Facey, MD, Katie Frank, PhD, OTR/L, Helen Milligan, PT, DPT, PCS, Mary Stephens, MD, MPH, FAAFP, FAADM - Adult Down Syndrome Center and Jefferson Health

The video below is a recording of a webinar presented by Hannah Facey, MD, Katie Frank, PhD, OTR/L, Helen Milligan, PT, DPT, PCS, and Mary Stephens, MD, MPH, FAAFP, FAADM, on August 29, 2024.

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Celiac Disease Visuals

Author: Adult Down Syndrome Center - Resource List

What is Celiac Disease?     Gluten-Free Foods     Eating Gluten-Free at Parties     Eating Gluten-Free at Restaurants     Additi

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My Emotions Triggers

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visuals linked below can help us identify triggers for our emotions. Triggers are situations that cause us to feel certain emotions. Some triggers may make us feel happy while other triggers may m

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Observable Signs of Emotions

Author: Abby Rowley, LCSW and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The visuals linked below can help us figure out what emotions we are feeling. Our bodies give us clues about what we are feeling. For example, when we feel sad, we might cry, frown, or put our head do

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Primary Care Provider's Guide to Women's Health and Down Syndrome

Author: National Down Syndrome Society - Guidebook

Overview The Primary Care Provider's Guide to Women's Health and Down Syndrome  was developed by the National Down Syndrome Society to help physicians and other healt

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Getting a Swallow Study Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting a Swallow Study Visual explains what happens when we have a swallow study done. This visual can help individuals with Down syndrome know what to expect during this test.

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Helping a Person with Down Syndrome Prepare for a Hospital Stay

Author: Adult Down Syndrome Center - Advocate Health

General Tips Encourage the person with Down syndrome to complete a health passport . Health passports are documents that contain information such as health history, medications, communication preferen

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Gallstones in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points The gallbladder is an important organ for the digestion of food. Stones in the gallbladder (gallstones) are more common in people with Down syndrome. While the stones often do not cause sym

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Recreational and Social Opportunities

Author: Jennifer Smid and Jenny Lutes - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Jennifer Smid and Jenny Lutes, patient advocates at the Adult Down Syndrome Center. Many of the resources are specific to the greater Chicagoland area a

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Hernias

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Hernias are defects in the connective tissue of the abdominal wall which allow tissue within the abdominal cavity to protrude. Often hernias do not require treatment. They can be monitored,

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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