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For people with Down syndrome, family members, caregivers and professionals.
Duration: 6 ms, Number of Results: 590
Key Points Tremors are repetitive involuntary movements. Tremors can be mild and cause limited disruption or more severe and restricting. There are many causes for tremors. An evaluation by a health p
Abstract Purpose of Review: Individuals with Down syndrome (DS) may be more susceptible to oral disorders as a result of a combination of genetic factors, immunological disturbances, anatomi
Social Media Checklists The document linked above contains 3 social media checklists: Social Media Safety - A list of steps to take to increase your safety online. Exampl
The Dual Diagnosis of Down Syndrome and Autism Webinar Presenters: Noemi Spinazzi, MD, FAAP, and Teresa Unnerstall Host Organization: Down Syndrome Connection of the Bay Area Aut
Making Good Choices on our Phones, Social Media, and the Internet Rules for Phone Use Rules for Social Media Use What I Can Share on Social Media
Making Good Choices on our Phones, Social Media, and the Internet Should we share a post, comment, message, picture, or video? Before sharing something, we should: 1. S
Tips for Successful Video Calls Remember: Video calls like Zoom are public spaces. This means that other people can see or hear what we do, say, and show. Fin
Rules for Phone Use Remember that phones are a public space. If you do not know the number, let the call go to voicemail. Make sure to call and text at a reasonable hour. Wait fo
Rules for Social Media Use I should have ONE account per social media platform. Account settings should be private. Location settings should be turned OFF on all apps. If I would not show i
What I Can Share on Social Media Questions to ask myself before I share... Why do I want to share this? Have I already shared something today? Will people want to see my post? Wh
Key Points How the body manages (regulates) body temperature is different in people with Down syndrome compared to people without Down syndrome. The difference in body temperature regulation
Title: Aging in Adults with Down Syndrome Date: January 29, 2024 Presenters: Brian Chicoine, MD and Hannah Graham, MD Host Organization: Down's Syndrome
Key Points People with Down syndrome experience pain but some individuals report it less often than people without Down syndrome. There are a variety of reasons why people with Down syndrome may repor
Key Points Red blood cells carry oxygen and carbon dioxide in the bloodstream. An elevated red blood cell count (polycythemia) occurs when there is an excess of red blood cells in the bloods
The visual below explains how we might feel when someone we care about dies and shares things we can do to help us cope. Coping with Grief &nb
This visual explains what happens when a pet dies and how it might make us feel. When a Pet Dies Other visuals are available in the Grief and Loss section of our Resource Library
The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW, on January 10, 2024. Description: Although people with Down syndrome can be excellent
Key Points A change in gait (walking) is a change seen in many people with Down syndrome. There are many possible causes for those changes. Family or other observers can play a critical role in assess
Key Points Alzheimer's disease is more common in people with Down syndrome. Presently, we do not know how to prevent or cure Alzheimer's disease. We may lower the risk of developing Al
The visuals linked below describe menopause and symptoms of menopause that women may experience. There are versions for lighter and darker skin. All menopause visuals Darker skin Lighter skin &nbs
Key Points on Prostate Cancer Prostate cancer is one of the most common types of cancer in men. There is uncertainty about the potential benefits and risks of prostate cancer screening for men.&nb
Key Points A dysgerminoma is a type of cancer that usually occurs in a woman's ovary. There is limited research on dysgerminomas in women with Down syndrome. It is not clear if dysgerminomas a
The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi
The resources in the Families and Caregivers section of our Resource Library are intended for a broad audience of parents, siblings, friends, and caregivers of individuals with Down
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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