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Products to Assist with Portion Control

Author: Adult Down Syndrome Center - Advocate Health

Managing portion sizes of foods can be challenging for people with and without Down syndrome. Below are some products that may help with portion control. Products such as these are sold by Am

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Co-Occurring Down Syndrome and Autism Spectrum Disorder (DS-ASD)

Author: Down Syndrome-Autism Connection - Website

It is estimated that 16-18% of people with Down syndrome also have autism spectrum disorder. The Down Syndrome-Autism Connection  is a nonprofit organization that provides s

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Vitamins and Supplements

Author: Brian Chicoine, MD - "Ask Dr. Chicoine" LuMind IDSC Foundation

Key Points Many people get all the nutrients they need by eating a healthy diet. Supplements may be recommended if a person has vitamin deficiencies or to promote health. More research needs to be don

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Respiratory Syncytial Virus (RSV) Vaccination

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is respiratory syncytial virus (RSV)? RSV is a virus that causes a common respiratory infection. The infection is usually mild and causes cold-like symptoms. People usually recover in a week or t

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Things I Can and Cannot Control Visual

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Things I Can and Cannot Control     Things I Cannot Control/Change Other people's emotions Other people's thoughts Other people's actions Some rules at work,

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Getting an IV Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting an IV Visual explains what happens when we have to get an intravenous line (IV). This visual can help individuals with Down syndrome know what to expect during this proc

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Relationships Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Relationships Visual       What is a relationship?  A relationship is a connection between 2 or more people.  We can have relationships with many types of

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My Thoughts Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

My Thoughts Story   This visual story explains thoughts and how we can learn to manage our thoughts.    Additional resources Reframing our Thoughts Automatic Negative Though

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Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED MAY 2024 Recommendation The physicians at the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follo

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Boundaries Visual

Author: Abby Rowley, LCSW and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Boundaries Visual   Boundaries Boundaries are a line you do not cross without permission. There are three types:    1. Personal Boundaries Personal space and what type of to

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Adaptive Clothing

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Dressing can be difficult for some individuals with Down syndrome, in part because bilateral coordination and dexterity skills can be challenging for many individuals with Down syndrome. Adap

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Promoting Mental Health Across the Lifespan in Individuals with Down Syndrome Webinar Recording (5/8/2024)

Author: Abby Rowley, LCSW and Brian Chicoine, MD - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Abby Rowley, LCSW, and Brian Chicoine, MD, on May 8, 2024.  Description:  Mental health is a critical component of overall we

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People Living with Down Syndrome in the USA, Europe, Australia, and New Zealand: Births and Population

Author: deGraff, Buckley, and Skotko - Fact Sheets

The fact sheets linked below share estimates of the numbers of babies born and people living with Down syndrome in the United States and Europe.  USA Fact Sheet   Last updated May 3,

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SLP, OT, PT for Down Syndrome: Supports Across the Lifespan

Author: Down Syndrome Medical Interest Group-USA - Therapy Workgroup

SLP, OT, PT for Down Syndrome   The Therapy Workgroup of the Down Syndrome Medical Interest Group-USA (DSMIG-USA) developed a resource (linked above) that describes how speech-language pathol

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Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

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Antibodies Against Measles

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is measles? Measles is a highly contagious viral infection. Due to the availability and effectiveness of vaccines, many individuals have never experienced or even seen measles in the United State

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Let's Talk About Dementia: A Booklet About Dementia for Adults with Down's Syndrome

Author: Down's Syndrome Scotland - Resource

This easy read booklet about dementia for individuals with Down syndrome was developed by Down's Syndrome Scotland. It can be used to support people with Down syndrome who are developing demen

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Dry Skin in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Dry skin is more common in people with Down syndrome. Some individuals with Down syndrome find treatment challenging because of negative sensory response to creams and ointments on the skin

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How to Put Your Hair into a Ponytail Video

Author: Kayla Millan, OTS and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The video below demonstrates one way of putting your hair into a ponytail.  See the  Self-Care and Hygiene  section of our library for additional resources.   Royal

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Hypothyroidism and Hyperthyroidism

Author: Ima V. Jonkheer, DO and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points  The thyroid gland is part of the endocrine system. It is a gland that is in the neck. Thyroid function affects or has an impact on many body functions and, therefore, abnormal thy

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Urinary Retention

Author: Agni Vlahos, MD and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Urinary retention is the build-up of excessive urine in the bladder. It appears to be more common in people with Down syndrome. A common reason for urinary retention in people with Down syn

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Urinary Tract Infections (UTIs)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Urinary tract infections (UTIs) are infections of the urethra, bladder, ureters, and/or kidneys. People with Down syndrome have risk factors for getting a UTI due to issues related to not e

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Urinary Incontinence

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Urinary incontinence or urinary "accidents" are more common in people with Down syndrome. There are many potential causes.  The inability to empty the bladder com

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Let's Talk About Death: A Booklet About Death and Funerals for People with Down's Syndrome

Author: Down's Syndrome Scotland - Booklet

This easy read booklet about death for individuals with Down syndrome was developed by Down's Syndrome Scotland. It can be used to support people with Down syndrome after someone close to them

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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