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For people with Down syndrome, family members, caregivers and professionals.

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Showing 145 - 168 of 457

Behavior Changes in Adolescents and Adults with Down Syndrome Webinar Slides (4/28/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L

This document contains the slides from the webinar on Behavior Changes in Adolescents and Adults with Down Syndrome presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on April 28, 2020.

Hospital Visitor Policies During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource List

UPDATED JUNE 2020 : On June 9, the Office for Civil Rights (OCR) at the U.S. Department of Health and Human Services (HHS) announced that it had reached a resolution on the first federal complaints regarding "no visitor" policies at hospitals, outpatient clinics, and outpatient sur

Challenges of Pediatric Disease in Adulthood

Author: Baumgardner & Chicoine - Journal of Patient-Centered Research and Reviews (2020)

Abstract: Some chronic diseases - such as the rare bone disease X-linked hypophosphatemia, the impetus for a study reported within Volume 7, Issue 2 of the  Journal of Patient-Centered Research and Reviews  - are diagnosed in childhood but become more symptomatic in adulthood. In t

Wearing Face Masks During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource List

The Centers for Disease Control and Prevention (CDC) recommends wearing masks in public settings, such as grocery stores and pharmacies, and when around people who do not live in your household.  The CDC provides guidance in the Masks section on their website.  A number of resource

Non-Discrimination in Medical Treatment for COVID-19

Author: Adult Down Syndrome Center - Resource List

Reports of potential discrimination in medical treatment for individuals with intellectual and developmental disabilities have caused fear, anxiety, and anger within the Down syndrome community. Departments of the federal government and some state governments have responded by issuing bulletins and

Co-Occurring Medical Conditions in Adults with Down Syndrome. Part II.

Author: Capone et al. - American Journal of Medical Genetics Part A (2020)

Abstract: Adults with Down syndrome (DS) represent a unique population who are in need of clinical guidelines to address their medical care. Many of these conditions are of public health importance with the potential to develop screening recommendations to improve clinical care for this population.

Coronavirus: What Is It and What Can I Do?

Author: The Arc Maryland and Maryland Developmental Disabilities Council

This document describes coronavirus (COVID-19) and steps we can take to keep ourselves and others safe.

Informacion de COVID-19 Por y Para Personas con Discapacidades (COVID-19 Information By and For People with Disabilities [Spanish])

Author: Green Mountain Self-Advocates

Informacion de COVID-19 Por y Para Personas con Discapacidades. This handout uses plain language to describe COVID-19, how it spreads, how to avoid getting it, and what to do if we get it.

COVID-19 Information By and For People with Disabilities [English]

Author: Green Mountain Self-Advocates

This handout uses plain language to describe COVID-19, how it spreads, how to avoid getting it, and what to do if we get it.

Let's Talk about the Coronavirus [COVID-19]

Author: Center for Autism and Related Disabilities (CARD) - University of Miami-Nova Southeastern University (UM-NSU)

The video below uses a drawn whiteboard technique to tell a social narrative about the novel coronavirus (COVID-19). It was developed by the University of Miami-Nova Southeastern University Center for Autism and Related Disabilities (UM-NSU CARD). 

Staying Connected to Your Health Care Provider During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Advocate Aurora Health

In light of the COVID-19 pandemic, many healthcare organizations - including ours - are encouraging patients to avoid coming to clinics and hospitals (when possible and if appropriate). Video appointments are being offered as an alternative. These visits are often accessed through health care organi

What is Death?

Author: Adult Down Syndrome Center

This handout talks about death. It describes what it is and how it might make us feel.

COVID-19 Resources

Author: Adult Down Syndrome Center - Resource List

Many organizations are compiling COVID-19 resource lists. We have included links to some of them below.  The amount of information about COVID-19 can be overwhelming and can cause anxiety and stress. Our mental health is just as important as our physical health during this time. We recommen

Work Recommendations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED JULY 2020: Additional information related to this topic can be found in our resource " Returning to School or Work in Fall 2020 ." UPDATED JUNE 2020: Additional information related to this topic can be found in our resource " Going to Public Places During

Low Carb Diets

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about low carb diets.  I am looking for information on helping my 28-year-old daughter with Down syndrome lose some weight. We both started a low carb diet a couple weeks ago and that seems to be going pretty well. Is there any reason why she can't continue th

Temperature Regulation in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about the typical body temperature of people with Down syndrome and how they regulate their body temperature.  Our review of the medical literature found little information. We found one article from Poland that compared body temperatures of people with Down syndrome

Healthy Ways to Celebrate World Down Syndrome Day

Author: Adult Down Syndrome Center

This handout lists 21 activities you can do to promote your physical, mental, and social health on World Down Syndrome Day!

My Rules for Conversation

Author: Adult Down Syndrome Center

This handout describes guidelines to follow when having conversations with others.

Work and Activity Considerations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED JULY 2020: Additional information related to this topic can be found in our resource " Returning to School or Work in Fall 2020 ." UPDATED JUNE 2020: Additional information related to this topic can be found in our resource " Going to Public Places During

Travel Considerations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED APRIL 2021: Additional information related to this topic can be found in our resource " Travel after COVID-19 Vaccination ." UPDATED JUNE 2020: Additional information related to this topic can be found in our resource " Going to Public Places During the CO

Refusal to Eat Solid Foods

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a person with Down syndrome who was refusing to eat solids. He was found to have dental disease. He needed several fillings and had a couple baby teeth removed. The dentist stated the problems were "minor" and should not have caused the issue. 

Self-Injurious Behavior

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Self-injurious behavior (SIB) is behavior that an individual does that results in harm to their own body. These behaviors may include hitting oneself, striking a body part against an object, throwing oneself on the floor, and/or head banging. Individuals with SIB are rarely trying to end their life

Living with Dementia

Author: Down's Syndrome Scotland

This booklet for families and caregivers of individuals with Down syndrome discusses dementia. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

Let's Talk about Dementia

Author: Down's Syndrome Scotland

This booklet for individuals with Down syndrome explains dementia using easy-to-read language. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

Showing 145 - 168 of 457
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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