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For people with Down syndrome, family members, caregivers and professionals.

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Self-Talk in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Self-talk is talking aloud to oneself or an imaginary friend. Many adults with Down syndrome (and adults without Down syndrome) talk to themselves. Talking to oneself is usually not concern

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Menstruation (Period) Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About Getting My Period Story About How to Change My Pad   Story About How to Change My Tampon   Story About How to Change My Period Panties   Story About When to Chan

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The Recipe for Health: How to Nourish Your Mind, Body, & Soul Webinar Recording (1/9/2025)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, the Medical Director of the Adult Down Syndrome Center.  Description:  Health is a state of complete phys

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Story About Getting My Period

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About Getting My Period - Darker Skin     Story About Getting My Period - Lighter Skin     Story About Getting My Period I am growing up. My body is changing.

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Story About How to Change My Pad

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Pad - Darker Skin     Story About How to Change My Pad - Lighter Skin     Story About How to Change My Pad This is how I will change my

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Story About How to Change My Tampon

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Tampon - Darker Skin     Story About How to Change My Tampon - Lighter Skin     Story About How to Change My Tampon This is how I will

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Story About How to Change My Period Panties

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Period Panties - Darker Skin     Story About How to Change My Period Panties - Lighter Skin     Story About How to Change My Period Pan

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Story About When to Change My Menstrual Hygiene Product

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About When to Change My Menstrual Hygiene Product - Darker Skin     Story About When to Change My Menstrual Hygiene Product - Lighter Skin     Story About Whe

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Obsessive-Compulsive Behaviors: Promoting Independence or Cause for Concern? Webinar Recording (01/08/2025)

Author: Michele Mattox, LCSW - North Carolina Down Syndrome Virtual Speaker Series

Title:  Obsessive-Compulsive Behaviors: Promoting Independence or Cause for Concern?  Date:  January 8, 2025 Presenter:  Michele Mattox, LCSW Host Organization:&

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Resources on Developing Greater Independence

Author: Adult Down Syndrome Center - Resource List

Becoming more independent is a goal for many adolescents and adults with Down syndrome. This goal may vary significantly from person to person. It can range from wanting to become more independent wit

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Supporting People with Down Syndrome in Managing their Personal Hygiene Webinar Recording (12/12/2024)

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L, occupational therapist at the Adult Down Syndrome Center.  Description:  Successfully completing per

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A Change in Behavior in a Person with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

A change in behavior is often noted in people with Down syndrome (DS) who have Alzheimer’s disease (AD). For some individuals, this is a natural part of the progression of AD. However, for o

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Regression in Down Syndrome Support Group

Author: Eileen Quinn, MD - Moderator

The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl

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Tips for Navigating the Holidays

Author: Shana Sexton, LCSW and Brittany Anderson, LCSW - Social Workers, Adult Down Syndrome Center

It's the holiday season which means many people are busy decorating, baking cookies, shopping and planning family celebrations. With that said, it can also bring about significant changes in r

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Tips for Being Physically Active Video

Author: Adult Down Syndrome Center - Video

It is important to be active and exercise. It helps us be strong and healthy! In this video, Jenny and Kathy share tips for being active, including ways we can be active and how to make exercising mor

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Compression Socks for People with Down Syndrome

Author: Sarah Mann, PT, DPT, MBA, NSCA-CPT and Brian Chicoine, MD - Mann Method PT and Fitness and Adult Down Syndrome Center

Key Points Many people with Down syndrome have increased lower leg and foot swelling. People with Down syndrome appear to have varicose veins more commonly than people without Down syndrome. 

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Use of Visual Supports

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

When I was trying to figure out how I was going to share information about visual supports, I came across someone who used the following poem (author unknown) to describe what it feels like when visua

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Pneumococcal Vaccines

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

What is pneumococcal disease?  Pneumococcal disease is caused by  Streptococcus pneumoniae  bacteria. It is a leading cause of vaccine-preventable illness and death in the U

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Healthy Aging in Adults with Down Syndrome Webinar Recording (10/24/2024)

Author: Brian Chicoine, MD and Hannah Graham, MD - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, and Hannah Graham, MD, on October 24, 2024. Description:  Individuals with Down syndrome are living longer and hea

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Enhancing Women's Health: Key Insights from the Primary Care Provider's Guide to Women's Health and Down Syndrome Webinar Recording (10/08/2024)

Author: Hannah Graham, MD - National Down Syndrome Society Webinar

Title:  Enhancing Women's Health: Key Insights from the Primary Care Provider's Guide to Women's Health and Down Syndrome  Date:  October 8, 2024 Pre

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Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome Virtual Forum (9/26/2024)

Author: Brian Chicoine, MD, Seth Keller, MD, and Amy Kolb-Tucker - Stanford University School of Medicine, the Stanford Alzheimer's Disease Research Center, and National Task Group for Intellectual Disabilities and Dementia Practices

On September 26, 2024, a virtual forum on Alzheimer's disease and Down syndrome was held. Title:  Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome: Opp

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Voting Resources

Author: Adult Down Syndrome Center - Resource List

General Voting Resources Your Voice, Your Vote, Your Future Webinar   National Down Syndrome Congress Webinar recording   Voting Resources   National Down Syndrome Society I

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How to Show I Am Calm Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below explain what we can do to show that we are calm. There are versions with and without checkboxes. The version with checkboxes can be used as part of a reward system (e.g., if t

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Nutrition and Hydration Apps

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

There are numerous factors to consider when deciding what to eat and drink including nutritional content, dietary restrictions and allergies, convenience, cost, and taste preferences. The apps listed

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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