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Two Opposite Issues

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Two Opposite Issues All is not Down syndrome (and all people with DS are not the same) There are common characteristics of people with Down syndrome   Part 1: All is not Down syndrome A Grace

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Two Syndromes

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

In the 1990s, I wrote a piece I called “Two Syndromes.” The title refers to how different the lives of people with Down syndrome are now compared to the past. With nearly

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Unexplained Regression in Down Syndrome: 35 Cases from an International Down Syndrome Database

Author: Santoro et al. - Genetics in Medicine (2019)

Abstract Purpose:  An entity of regression in Down syndrome (DS) exists that affects adolescents and young adults and differs from autism spectrum disorder and Alzheimer disease.  Me

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Unexplained Weight Loss

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What can cause unexplained weight loss? We were sent a question about unexplained weight loss. We are sharing some information here for general knowledge and/or information that can be used in consult

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Upper Respiratory Infection - The Common Cold

Author: Jenna Okerblom, DO - Family Medicine, Advocate Lutheran General Hospital

What is it? Most commonly caused by respiratory viruses. Signs and symptoms of the common cold include fever, cough, runny nose, congestion, sore throat, headache, and aches and pains all over. Usuall

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Urinary Incontinence

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Urinary incontinence or urinary "accidents" are more common in people with Down syndrome. There are many potential causes.  The inability to empty the bladder com

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Urinary Retention

Author: Agni Vlahos, MD and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Urinary retention is the build-up of excessive urine in the bladder. It appears to be more common in people with Down syndrome. A common reason for urinary retention in people with Down syn

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Urinary Tract Infections (UTIs)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Urinary tract infections (UTIs) are infections of the urethra, bladder, ureters, and/or kidneys. People with Down syndrome have risk factors for getting a UTI due to issues related to not e

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Use of Aspirin to Prevent Heart Attacks

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about the use of aspirin to prevent heart attacks in people with Down syndrome. We have provided some information below. Please note that this information is for educational pu

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Use of Probiotics by People with Down Syndrome

Author: Adult Down Syndrome Center - Resource

What are probiotics? Probiotics are foods or supplements that contain live microorganisms (e.g., bacteria). Foods with labels that say "live and active cultures" contain probiotics.

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Use of Prolia to Treat Osteoporosis

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were asked a question about the use of Prolia to treat osteoporosis in individuals with Down syndrome. Osteoporosis is a condition in which a person's bones become brittle or weak. It can l

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Use of Visual Supports

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

When I was trying to figure out how I was going to share information about visual supports, I came across someone who used the following poem (author unknown) to describe what it feels like when visua

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Using "I" Statements

Author: Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

We discuss "I" statements in our social skills groups for individuals with Down syndrome. "I" statements are a way to share how we feel in a clear, calm, and respec

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Using First/Then Boards

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

We like to use visual supports to set or manage expectations. One type of visual support that can be helpful is a first/then board. When using a visual support, there can be words, pictures, or a comb

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Using Games in Social Skills Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

We have found that incorporating games into our social skills groups can help convey important messages as well as help participants practice appropriate social skills in a non-threa

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Using the Toilet Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals under the headers can help us remember the steps for using the toilet. Tap or click on the headers to find printable versions for girls/women and boys/men. There are also versions

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Vision in Adults with Down Syndrome

Author: Lalithasree Chintam, MD - Family Medicine, Advocate Lutheran General Hospital

People with Down syndrome (DS) experience many of the common eye problems that people without DS experience. Some people with DS experience these common eye problems more frequently and/or at an earli

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Visits to a Doctor's Office

Author: Adult Down Syndrome Center - Visual

Visits to a Doctor's Office   When I have a doctor's appointment, I will... leave the house get out of the car sit in the waiting room go with the nurse when they call my name

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Visual Schedule Apps

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Visual schedules help an individual know what to expect. The schedule can be a list of activities for the entire day, only the morning or evening routine, or even the chores that need to be done. This

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Visuals About the Food Groups

Author: Adult Down Syndrome Center - Visuals

Eating a variety of foods helps us stay healthy! The visuals below explain 4 types of foods:  Fruits and vegetables Grains Protein Dairy   Fruits and vegetables   G

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Visuals and Videos About the COVID-19 Vaccine

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine &a

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Visuals and Videos About Wearing Masks During COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about wearing masks during COVID-19. We have provided links to some of them below.  VISUALS / STORIES / PLAIN LANGUAGE RESOURCES Wearing a

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Visuals for Medical Appointments

Author: Adult Down Syndrome Center - Resource List

Visuals can help individuals with Down syndrome prepare for and know what to expect at medical appointments. Our Resource Library has several examples.    Visits to the Doctor &n

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Vitamin B12 and Folate

Author: Brian Chicoine, MD - Adult Down Syndrome Center

Key Points Vitamin B12 and folate are vitamins that serve important functions in the human body. There are differences in how effectively these vitamins perform their functions in people with Down syn

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