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For people with Down syndrome, family members, caregivers and professionals.
Duration: 21 ms, Number of Results: 573
Abstract Some chronic diseases - such as the rare bone disease X-linked hypophosphatemia, the impetus for a study reported within Volume 7, Issue 2 of the Journal of Patient-Centered Researc
Key Points A change in gait (walking) is a change seen in many people with Down syndrome. There are many possible causes for those changes. Family or other observers can play a critical role in assess
What are cholesteatomas? A cholesteatoma is a collection of skin cells that become more fibrous and build up in the middle ear (where the small bones are that are part of our hearing mechani
Choosing Clothing for Cold vs. Warm Weather, female Choosing Clothing for Cold vs. Warm Weather, male Clothes for Cold Weather When it is cold outside, I need to wear a coat. I m
This Chore Chart has images and templates that can be used to create a weekly chore schedule and/or keep track of when chores are completed. &nb
Key Points Chronic cough is a cough that lasts more than eight weeks (four weeks in a child). There are many reasons for a chronic cough. Three common causes in people with Down syndrome (DS) include
Abstract Alzheimer's disease (AD) may affect in excess of 90% of individuals with Down syndrome (DS) after age 60, due to duplication of the APP gene in trisomy of chromosome 21, with neuropat
Abstract Background: Persons with Down syndrome (DS) are presumed to be at high risk of severe CoVID-19 due to immune dysregulation and often compromised cardiopulmonary function. Aim of the
Clothing Match Game - Cold/Warm Weather This sorting game contains images of clothing for cold and warm weather. Cut out the images. Instruct participants to sort the images into two piles -
Abstract Background: Down syndrome (DS) is one of the most common genetic causes of intellectual disability, and it is associated with an increased incidence of numerous co-occurring conditi
It is estimated that 16-18% of people with Down syndrome also have autism spectrum disorder. The Down Syndrome-Autism Connection is a nonprofit organization that provides s
Abstract Adults with Down syndrome (DS) represent a unique population who are in need of clinical guidelines to address their medical care. The United States Preventive Service Task Force (USPSTF) has
Abstract Adults with Down syndrome (DS) represent a unique population who are in need of clinical guidelines to address their medical care. Many of these conditions are of public health importance wit
This list of resources was compiled by Ann Garcia, patient advocate at the Adult Down Syndrome Center. Most of these resources are specific to the greater Chicagoland area and/or Illinois. If
Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco
The video below is a recording of a webinar presented by Brian Chicoine, MD, on March 28, 2024. Description: Some health conditions such as thyroid disorders and sleep apnea are mor
"If you have met one person with Down syndrome, you have met one person with Down syndrome" is a sentiment often shared in the Down syndrome community. We certainly know this idea ap
Abstract Background: Down syndrome (DS) has been associated with cardiovascular, gastrointestinal, and immune-related abnormalities. Several dermatologic conditions, including hidradenitis s
Abstract Background: Down syndrome is the most common genetic cause of intellectual disability and Alzheimer's disease. In the general population, common mental disorders (CMDs), inc
Many women with Down syndrome experience symptoms associated with their period. When those symptoms are consistent or more severe, women are sometimes diagnosed with premenstrual syndrome (PMS) or pre
Communication Board This communication board contains words and phrases with corresponding images. An individual can point at one of the words or phrases to communicate needs, wants, and feelings.&
Abstract Background: Hidradenitis suppurativa (HS) is associated with comorbidities that contribute to poor health, impaired life quality, and mortality risk. Objective: T
Key Points Many people with Down syndrome have increased lower leg and foot swelling. People with Down syndrome appear to have varicose veins more commonly than people without Down syndrome.
Compromise Compromise What does compromise mean? Not always getting your way. Doing something that is not your idea. Compromise... Requires flexible thinking. Is a skill that helps us devel
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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