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Tips for Building a New Habit or Routine

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Many individuals with Down syndrome have “ the groove ” or a set pattern or routine in their actions or thoughts. This preference for sameness or repetition can be advantageous whe

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Vitamin B12 and Folate

Author: Brian Chicoine, MD - Adult Down Syndrome Center

Key Points Vitamin B12 and folate are vitamins that serve important functions in the human body. There are differences in how effectively these vitamins perform their functions in people with Down syn

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Function of the Autonomic Nervous System in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points The autonomic nervous system is the part of the nervous system that functions “automatically” without us needing to think about it. The autonomic nervous system works di

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Adapting Activities for Older Adults with Down Syndrome Webinar Recording (3/13/2025)

Author: Katie Frank, PhD, OTR/L - Senior Occupational Therapist, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L, Senior Occupational Therapist at the Adult Down Syndrome Center.  Description: As adults with Down syndrome a

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Health Benefits of Chores

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Just thinking about chores can make us want to groan but doing chores can be beneficial for our physical and mental health. Doing chores is one way to incorporate more physical activ

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MCH and MCV: Differences in Red Blood Cells of People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points The red blood cells of people with Down syndrome are often larger than normal.  Additional evaluation (testing) is indicated if the finding of large red blood cells (measured by MC

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Health Passports - Information Forms to Share with Hospitals and Clinics

Author: Adult Down Syndrome Center - Resources

Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfami

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Pain in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points People with Down syndrome experience pain but some individuals report it less often than people without Down syndrome. There are a variety of reasons why people with Down syndrome may repor

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Balance and Down Syndrome

Author: Jennifer Spiric, PT, DPT and Brian Chicoine, MD - Mann Method PT and Fitness and Adult Down Syndrome Center

Key Points Differences in the body's sensory systems in people with Down syndrome can contribute to impairments in balance. Impaired balance can limit the ability or willingness of people with

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Sleep Apnea

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Sleep apnea is the temporary stoppage of breathing while sleeping. Sleep apnea is more common in people with Down syndrome. There are 3 types of sleep apnea. The most common type in people

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Educating Your Loved One With Down Syndrome About Sexuality

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Sexuality and sexual education Sexuality is an integral part of who we are, what we believe, what we feel, and how we respond to others. It is a healthy and positive aspect of being human. There are m

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Two Syndromes

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

In the 1990s, I wrote a piece I called “Two Syndromes.” The title refers to how different the lives of people with Down syndrome are now compared to the past. With nearly

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Sexuality Resources

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Adult Down Syndrome Center Articles and Webinar Recordings Visuals and Videos   Websites Disability Inclusive Sexual Health Network Resources (SexEdVA) Healthy Relationships Handbook (The Arc

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Fainting (Syncope)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Fainting is a brief loss of consciousness. Fainting may be more common in people with Down syndrome. Fainting may be more common because of differences in body function in people with Down

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Down Syndrome Center Podcast

Author: Down Syndrome Center of Western Pennsylvania - UPMC Children's Hospital of Pittsburgh

The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi

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Heart Rates and Exercise

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What are maximum and target heart rates? Maximum heart rate (MHR) and target heart rate (THR) are values that are often used in exercise recommendations. Maximum heart rate is the estimated fastest ra

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6 Ways to Avoid the Winter Blues

Author: Adult Down Syndrome Center - Resource

Cold weather, less sunlight, post-holiday fatigue. These can all take a toll on our mental health during the winter months. Some people with Down syndrome may be unable to communicate how these factor

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Life Expectancy, Aging, and the Down Syndrome Population

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points The life expectancy of people with Down syndrome is between 50 and 60 years of age.  The life expectancy of people with Down syndrome increased dramatically during the 20th century

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Self-Talk in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Self-talk is talking aloud to oneself or an imaginary friend. Many adults with Down syndrome (and adults without Down syndrome) talk to themselves. Talking to oneself is usually not concern

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The Recipe for Health: How to Nourish Your Mind, Body, & Soul Webinar Recording (1/9/2025)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, the Medical Director of the Adult Down Syndrome Center.  Description:  Health is a state of complete phys

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Obsessive-Compulsive Behaviors: Promoting Independence or Cause for Concern? Webinar Recording (01/08/2025)

Author: Michele Mattox, LCSW - North Carolina Down Syndrome Virtual Speaker Series

Title:  Obsessive-Compulsive Behaviors: Promoting Independence or Cause for Concern?  Date:  January 8, 2025 Presenter:  Michele Mattox, LCSW Host Organization:&

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Skin Condition Handouts

Author: The Society for Pediatric Dermatology - Resource List

The Society for Pediatric Dermatology (SPD) developed a set of handouts about skin conditions in individuals with Down syndrome. The handouts refer to infants, children, and teenagers with Do

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Resources on Developing Greater Independence

Author: Adult Down Syndrome Center - Resource List

Becoming more independent is a goal for many adolescents and adults with Down syndrome. This goal may vary significantly from person to person. It can range from wanting to become more independent wit

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Supporting People with Down Syndrome in Managing their Personal Hygiene Webinar Recording (12/12/2024)

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L, occupational therapist at the Adult Down Syndrome Center.  Description:  Successfully completing per

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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