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For people with Down syndrome, family members, caregivers and professionals.

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Alzheimer's Orientation Book

Author: Adult Down Syndrome Center

An orientation book can be used for people with Alzheimer’s disease or dementia to help them remember things about their daily life.

Keeping Connected to Someone with Memory Loss

Author: All Trust Home Care

This two-page resource provides ideas for staying connected to someone who is experiencing memory loss.

Seizures in People with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about seizures in a person with Down syndrome who developed Alzheimer’s disease. The individual continued to experience seizures despite being treated with l

Alzheimer's Disease in Down Syndrome Presentation (2/26/2019)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a presentation called "Alzheimer's Disease in Down Syndrome" given by Brian Chicoine, MD on February 26, 2019. He provides an overview of Al

Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

Alzheimer's Disease Video Journal Segment 5a

Author: Adult Down Syndrome Center - Video Journal

The video below is the fifth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer

Alzheimer's Disease Video Journal Segment 5b

Author: Adult Down Syndrome Center - Video Journal

The video below is the fifth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer

Reducing Risk of Getting Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

At a recent Advocate Aurora Health event, Darren Gitelman, MD, Senior Medical Director of the Advocate Memory Center, presented on Alzheimer’s disease. He focused on ways to prevent or reduc

Steps to Accessing Adult Services and Supports

Author: Grace O’Connor and Ann Garcia - Patient Advocates, Adult Down Syndrome Center

While special education services are an entitlement, adult services are based on eligibility and availability of funding. If you are eligible and funding is available, services can be accessed. In the

Alzheimer's Disease Video Journal Segment 4a

Author: Adult Down Syndrome Center - Video Journal

The video below is the fourth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with

Alzheimer's Disease Video Journal Segment 4b

Author: Adult Down Syndrome Center - Video Journal

The video below is the fourth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with

Mammograms

Author: Sravanthi Paritala, MD - Family Medicine Resident, Advocate Lutheran General Hospital

What is a mammogram? A mammogram is a special type of x-ray that looks for breast cancer, which is the most common cancer among women. The United States Preventive Services Task Force (USPSTF) recomme

Aging and Down Syndrome: A Health & Well-Being Guidebook

Author: National Down Syndrome Society - Resource

The resource linked below is a guidebook from the National Down Syndrome Society . According to the Introduction, "Adults with Down syndrome, along with their families and caregivers, need ac

Alzheimer's Disease & Down Syndrome: A Practical Guidebook for Caregivers

Author: National Down Syndrome Society - Resource

The guidebook linked below was published by the National Down Syndrome Society "to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer

Alzheimer's Disease Video Journal Segment 3

Author: Adult Down Syndrome Center - Video Journal

The video below is the third segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer

Alzheimer's Disease Video Journal Segment 1

Author: Adult Down Syndrome Center - Video Journal

The video below is the first segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer

Alzheimer's Disease Video Journal Segment 2

Author: Adult Down Syndrome Center - Video Journal

The video below is the second segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheime

Aggressive Behavior and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

I received the question below:  I am writing to you for advice on how to handle extreme aggressive behavior my 48-year-old son has been displaying. This has been going on now for over a year

Jenny's Diary: A Resource to Support Conversations about Dementia with People who have an Intellectual Disability

Author: Karen Watchman, Irene Tuffrey-Wijne, & Sam Quinn - University of Stirling

The resource linked below is a free to download booklet and set of postcards aimed at supporting conversations about dementia with people who have an intellectual disability. https://www.learningdisab

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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