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Attention-Deficit/Hyperactivity Disorder in Individuals with Down Syndrome Video

Author: Joseph Pereira - Harvard Medical School, MassGeneral Hospital for Children

The video below was narrated and presented by Joseph Pereira, a 4th year medical student at Harvard Medical School, as part of his work with the MGH Down Syndrome Program . He shares information about

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Fear of Heights

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We have seen people with Down syndrome with a variety of phobias. Concern about heights is one we see more commonly. For this fear in particular, we often ask if it is indeed a phobia or if it is caus

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Down Syndrome and Mental Health

Author: Down Syndrome Australia - Resource

The resource found at the link below is an 11-page summary for individuals with Down syndrome and their families on promoting and maintaining good mental health. Dr. Chicoine and Dr. McGuire's

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Coping With Transitions, Loss, and Grief

Author: Melissa Levin, MSW, LICSW

This is a handout with information on coping with transitions (such as leaving high school, changes in family dynamics, etc.) and the feelings of loss and grief that can accompany these transitions.

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Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

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Mammograms

Author: Sravanthi Paritala, MD - Family Medicine Resident, Advocate Lutheran General Hospital

What is a mammogram? A mammogram is a special type of x-ray that looks for breast cancer, which is the most common cancer among women. The United States Preventive Services Task Force (USPSTF) recomme

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Promoting Mental Health Presentation (9/6/2017)

Author: Adult Down Syndrome Center Staff - Adult Down Syndrome Center

Below is a recording of a presentation given by providers at the Adult Down Syndrome Center on the topic of promoting mental health. Two videos are included below - one contains the presentations and

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Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

1. Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever they are, are normal and they are not alone. It can help just t

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Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

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I have Down Syndrome. What is it?

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

An interesting topic came up in our social skills group recently. The participants were teenagers and were all at an age when they were considering identity issues and thinking about the future. Some

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Self-Talk in Adults with Down Syndrome

Author: Jacqueline Brom, MD - Family Medicine Resident, Advocate Lutheran General Hospital

I remember my first day working with Dr. Chicoine at the Adult Down Syndrome Center. I could sense the discomfort in “Aaron” as he moved his stool away from the new face and strang

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Helping a Person with Down Syndrome Make Goals

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It’s a time of year when many people are thinking about the New Year and making New Year’s Resolutions. Many of us have goals for the year to come. How can you help someone with Do

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Ten Tips for Surviving the Holidays

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It’s holiday time and many people are busy decorating, baking cookies, shopping, and planning family celebrations. There are often significant changes in routine and breaks from school or da

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Pica - The Basics for Caregivers

Author: Natalie Pagoria, MD - Family Medicine Resident, Advocate Lutheran General Hospital

Introduction Pica is one of the most common eating disorders among individuals with autistic spectrum disorder and intellectual disabilities. Practically the illness is characterized by a pattern (mor

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Managing Anger or Anxiety

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Have you ever wondered how to help someone with Down syndrome manage their anger or anxiety? There are a few techniques that I teach people that may help.  The first technique is called &

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Recurrent Pneumonia

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Definition of Pneumonia  (by the Mayo Clinic ) Pneumonia is an infection that inflames the air sacs in one or both lungs. The air sacs may fill with fluid or pus, causing cough with phlegm or

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Transitions, Fear, and Anxiety

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

“ Life would be simpler if we could counter the fear of change just by telling people, ‘Change is inevitable, get used to it.’” ( Conquering Fear: Living Boldly

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Behavior Change

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Any and all behavior change should be viewed as a possible communication tool. In the office, via email, at conferences, and most anywhere we talk about Down syndrome, someone will ask about a change

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Trichotillomania

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Trichotillomania is “hair loss from repeated urges to pull or twist the hair until it breaks off. Patients are unable to stop this behavior, even as their hair becomes thinner” ( s

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Selective Mutism

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is selective mutism? A condition in which a person with normal verbal skills does not speak in particular settings. Are there typical settings where a person won’t talk? Often

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Self-Esteem

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Self-awareness. Self-appreciation. Self-esteem. These can be difficult pursuits for people without Down syndrome and sometimes for people with Down syndrome. Some of our most challenging patients have

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Celiac Disease and Obsessive Compulsive Disorder

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Can celiac disease cause obsessive compulsive disorder? This question was recently asked by a family member of a person with Down syndrome.  I have reviewed several articles and other informa

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The Groove

Author: Dennis McGuire, PhD, LCSW - Director of Psychosocial Services, Adult Down Syndrome Center

One of the most interesting and consistent findings from the Adult Down Syndrome Center is the discovery that people with DS need sameness, repetition, and order in their lives. We call this tendency

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Self-Talk in Adults with Down Syndrome

Author: Dennis McGuire, PhD; Brian Chicoine, MD; & Elaine Greenbaum, PhD - Disability Solutions (July/August 1997)

The article below was published in the July/August 1997 edition of  Disability Solutions.  It is republished with permission. A PDF copy of the article can be downloaded at this link

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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