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For people with Down syndrome, family members, caregivers and professionals.

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Finding a Mental Health Professional

Author: Adult Down Syndrome Center - Resource List

Finding and working with mental health professionals We often receive questions about how to find therapists, psychiatrists, or other mental health professionals with experience working with

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Fatigue

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Fatigue is a common symptom for people with and without Down syndrome. It involves feelings of extreme tiredness and lack of energy. Lifestyle choices can contribute to fatigue. There are a

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Trichotillomania (Hair Pulling)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Trichotillomania is a mental health condition in a category called "body-focused repetitive behaviors." It is characterized by frequent, repeated, and irresistible urges t

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Possible Causes of Hair Loss

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Hair loss can be caused by many conditions. Alopecia areata and alopecia totalis are autoimmune conditions that are more common in people with Down syndrome compared to people without Down

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Pain in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points People with Down syndrome experience pain but some individuals report it less often than people without Down syndrome. There are a variety of reasons why people with Down syndrome may repor

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Fainting (Syncope)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Fainting is a brief loss of consciousness. Fainting may be more common in people with Down syndrome. Fainting may be more common because of differences in body function in people with Down

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6 Ways to Avoid the Winter Blues

Author: Adult Down Syndrome Center - Resource

Cold weather, less sunlight, post-holiday fatigue. These can all take a toll on our mental health during the winter months. Some people with Down syndrome may be unable to communicate how these factor

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Obsessive-Compulsive Behaviors: Promoting Independence or Cause for Concern? Webinar Recording (01/08/2025)

Author: Michele Mattox, LCSW - North Carolina Down Syndrome Virtual Speaker Series

Title:  Obsessive-Compulsive Behaviors: Promoting Independence or Cause for Concern?  Date:  January 8, 2025 Presenter:  Michele Mattox, LCSW Host Organization:&

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Preparing for Camp and Beyond Webinar Recording (8/29/2024)

Author: Hannah Facey, MD, Katie Frank, PhD, OTR/L, Helen Milligan, PT, DPT, PCS, Mary Stephens, MD, MPH, FAAFP, FAADM - Adult Down Syndrome Center and Jefferson Health

The video below is a recording of a webinar presented by Hannah Facey, MD, Katie Frank, PhD, OTR/L, Helen Milligan, PT, DPT, PCS, and Mary Stephens, MD, MPH, FAAFP, FAADM, on August 29, 2024.

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Recreational and Social Opportunities

Author: Jennifer Smid and Jenny Lutes - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Jennifer Smid and Jenny Lutes, patient advocates at the Adult Down Syndrome Center. Many of the resources are specific to the greater Chicagoland area a

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Hernias

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Hernias are defects in the connective tissue of the abdominal wall which allow tissue within the abdominal cavity to protrude. Often hernias do not require treatment. They can be monitored,

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Promoting Mental Health Across the Lifespan in Individuals with Down Syndrome Webinar Recording (5/8/2024)

Author: Abby Rowley, LCSW and Brian Chicoine, MD - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Abby Rowley, LCSW, and Brian Chicoine, MD, on May 8, 2024.  Description:  Mental health is a critical component of overall we

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Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

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Urinary Incontinence

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Urinary incontinence or urinary "accidents" are more common in people with Down syndrome. There are many potential causes.  The inability to empty the bladder com

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Connective Tissue and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Connective tissue is the tissue that helps hold our bodies together. Connective tissue is different in people with Down syndrome compared to others.  People with Down syndrome have

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Tremors in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Tremors are repetitive involuntary movements. Tremors can be mild and cause limited disruption or more severe and restricting. There are many causes for tremors. An evaluation by a health p

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Temperature Regulation in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points  How the body manages (regulates) body temperature is different in people with Down syndrome compared to people without Down syndrome. The difference in body temperature regulation

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Mastering Social Skills for Success in the Workplace Webinar Recording (1/10/2024)

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW, on January 10, 2024. Description: Although people with Down syndrome can be excellent

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Changes in Gait (Ambulation, Walking)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A change in gait (walking) is a change seen in many people with Down syndrome. There are many possible causes for those changes. Family or other observers can play a critical role in assess

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Prostate Cancer Screening in Men with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points on Prostate Cancer Prostate cancer is one of the most common types of cancer in men. There is uncertainty about the potential benefits and risks of prostate cancer screening for men.&nb

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Dysgerminomas in Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A dysgerminoma is a type of cancer that usually occurs in a woman's ovary. There is limited research on dysgerminomas in women with Down syndrome. It is not clear if dysgerminomas a

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Psychotherapy for Individuals with Down Syndrome

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Key Points Some people with Down syndrome benefit from psychotherapy. Therapists work with individuals with a variety of skills, needs, and goals. Psychotherapy is often one part of a treatment plan t

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Grief and Loss Podcast Episodes

Author: Rose Reif, LCMHC, CRC, BC-TMH - Multiple Organizations

Rose Reif, a licensed clinical mental health counselor, certified rehabilitation counselor, and qualified developmental disability and mental health professional, has been featured on two podcast epis

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Behavior Change

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Any and all behavior change should be viewed as a possible communication tool. For some people with Down syndrome (DS), like some without DS, a behavior change may be a form of communication. This is

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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