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For people with Down syndrome, family members, caregivers and professionals.
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Irritable bowel syndrome (IBS) is a health issue in the intestines (bowels). It is not clear how common it is in people with Down syndrome (DS). However, we suspect that IBS is more common i
We received a question from a family member of an individual with Down syndrome who is anxious and fearful of bad weather, particularly thunderstorms. Thunder, lightning, strong winds, heavy rain, hai
Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical
The video below is a recording of a webinar presented by Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Hannah Graham, MD of the Adult Down Syndrome Center in Park Ridge, IL. The providers responded
While many solid tumor cancers are less common in people with Down syndrome compared to people without Down syndrome, testicular cancer is one type of solid tumor cancer that is&am
The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi
Dressing can be difficult for some individuals with Down syndrome, in part because bilateral coordination and dexterity skills can be challenging for many individuals with Down syndrome. I ha
On December 14, 2021, the Down Syndrome Association of Delaware hosted a webinar called, "Traveling the Road Towards Independence." The presenter was Lina Patel, PsyD. A recording of
The video below is a recording of a webinar presented by Brian Chicoine, MD on November 10, 2021. Dr. Chicoine is the co-founder and medical director at the Adult Down Syndrome Center. The topic of th
Recommendations for breast cancer screening have varied over time and continue to vary . Organizations have different recommendations for when women should start being screened for breast cancer and h
Do you or does a family member or friend with Down syndrome dread getting blood drawn? Here are some tips to help with blood draws: Make sure to be hydrated ! This will help the phl
Swallowing problems (dysphagia) are common in people with Down syndrome (DS). In our large cohort study that reviewed health data from people cared for within Advocate Health, swallowing problems were
Are you a person with Down syndrome and you are being prescribed a new medication? Are you assisting a person with Down syndrome with their health care and the individual is being prescribed a new med
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on August 25, 2021. Dr. Chicoine is the medical director at the Adult Down Syndrome Center and D
On July 28, 2021, the Down Syndrome Association of Delaware hosted a webinar called, "Helping Children and Adults with Down Syndrome to Cope with Grief." The presenter was Rose Reif,
This list below includes information about respite organizations and providers in the greater Chicagoland area and/or Illinois. The types of respite provided are also included and color-coded: &nb
Publisher's Book Description Awards for the First Edition: 2007 Independent Publisher Award: Bronze Medalist in Psychology/Mental Health Category 2006 Best Book Awards, Psychology/Me
We received a request for information on dysgerminomas in women with Down syndrome. Dysgerminomas are germ cell tumors that typically occur in the ovary. Testicular cancer is the comparable cancer in
New and returning patients to the Adult Down Syndrome Center are asked to fill out a health questionnaire to share important information with their health care provider and help guide their appointmen
What are probiotics? Probiotics are foods or supplements that contain live microorganisms (e.g., bacteria). Foods with labels that say "live and active cultures" contain probiotics.
The video below is a recording of a webinar presented by Brian Chicoine, MD on February 10, 2021. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrome Center. In this present
Fibrosis of the liver can be thought of as a "scar" in the liver that results from chronic liver injury. It is similar to scarring that may form on the skin or in the lung or other o
Since April, staff at the Adult Down Syndrome Center have been hosting online socials and social skills groups via Zoom. Our goal is to encourage social participation and engagement while we maintain
Should men with Down syndrome (DS) undergo prostate specific antigen (PSA) blood testing for prostate cancer screening? The United States Preventive Services Task Force (USPSTF) recommends the followi
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.