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For people with Down syndrome, family members, caregivers and professionals.

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Measles and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Measles is a highly contagious infection. It can have very serious complications. There has been a recent increase in measles infections.  Little is known about measles infection s

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Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED January 18, 2024 The physicians of the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follow the recommenda

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Changes in Gait (Ambulation, Walking)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A change in gait (walking) is a change seen in many people with Down syndrome. There are many possible causes for those changes. Family or other observers can play a critical role in assess

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Regression in Persons with Down Syndrome

Author: Down Syndrome Medical Interest Group - USA - Current Consensus Update for Families

Regression in Persons with Down Syndrome: Current Consensus Update for Families   The Down Syndrome Medical Interest Group - USA (DSMIG-USA) developed a consensus update for families on Down

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Regression & Down Syndrome

Author: National Down Syndrome Society - Website

The Regression & Down Syndrome page  on the National Down Syndrome Society's website has information about Down syndrome regression disorder including symptoms, treatment, and

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Mann Method PT Exercises

Author: Mann et al. - Mann Method Physical Therapy and Fitness

The Mann Method PT Exercise Program - Prescription Chart    contains a list of exercises developed for people with Down syndrome. The list includes foundational exercises, hip streng

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Decline in Skills and Regression in Adolescents and Adults with Down Syndrome Webinar Recording (8/31/2022)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD of the Adult Down Syndrome Center. Individuals with Down syndrome may experience decline in skills for many reasons

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Electroconvulsive Therapy, Catatonia, and Regression in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Electroconvulsive therapy (ECT) is a treatment that involves sedating an individual with anesthesia and then inducing a seizure with a short electrical stimulation of the brain (more information can b

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Pneumococcal Vaccines

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

What is pneumococcal disease?  Pneumococcal disease is caused by  Streptococcus pneumoniae  bacteria. It is a leading cause of vaccine-preventable illness and death in the U

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Warning Signs a Person with Down Syndrome is Getting Overheated

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Exercise is important for people with Down syndrome just as it is for all people. For all people, care must be taken to avoid overdoing it with exercise. Excessive sweating can be a sign to ease back,

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Immune Response to COVID-19 Vaccines

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We have shared both our clinical experience and studies that demonstrate clinical effectiveness and safety of COVID-19 vaccines in people with Down syndrome. However, until recently, studies have not

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Dental Implants

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We sometimes receive questions about dental implants. A small number of people with Down syndrome seen in our office have reported that they opted to get dental implants, and most of these individuals

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Possible Causes of Regression in People with Down Syndrome during the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.

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Regression in Down Syndrome Support Group

Author: Eileen Quinn, MD - Moderator

The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl

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Taking Medication for Side Effects from the COVID-19 Vaccine

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As with all vaccines, there is the potential to experience side effects after getting the COVID-19 vaccine. This is true for people with and without Down syndrome. These side effects may include pain

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Refusal to Eat Solid Foods

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a person with Down syndrome who was refusing to eat solids. He was found to have dental disease. He needed several fillings and had a couple baby teeth removed. The dentis

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Antibodies Against Measles

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were recently contacted regarding the testing for antibodies (immunity) against measles as part of a pre-employment physical. This is a common request for jobs in health care and for some colleges.

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Dental Care Guidance for Caregivers of Patients with Down Syndrome

Author: Greg Grillo, DDS and Andrew Jordan, DDM - Dentably

Dental Care Guidance for Caregivers of Patients with Down Syndrome is an article that shares information about common dental problems, finding the right dentist, sedation, appointment preparation, and

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Strength Training in Adults with Down Syndrome

Author: Maura Fitzpatrick-Kissick, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Before starting an exercise program, we recommend discussing it with your health care provider. Strength is one part of fitness that helps keep you healthy and strong. Strength can h

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Oral Health and Hygiene Presentation (3/6/2018)

Author: Blase Brown, DDS, MA, Bridget Brown, and UIC Dental Students - Video

The video below is a recording of a presentation on Oral Health and Hygiene hosted by the Adult Down Syndrome Center in March 2018. Self-advocate Bridget Brown describes important aspects of oral hygi

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Influenza

Author: Shelly Verma, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Influenza, or the flu, is caused by the influenza virus. Flu season starts in the fall and peaks between December to March. However, it can last as late as May. There are many different strains of the

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Exercise in People with Down Syndrome

Author: Kyle Yost, DO - Family Medicine Resident, Advocate Lutheran General Hospital

In the United States, obesity is on the rise. This is also true for individuals with Down syndrome. Individuals with Down syndrome are at a higher risk of becoming obese compared to the general popula

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Shingles Vaccine

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Shingles is a painful skin rash caused by the virus Varicella Zoster (a member of the herpes family). In a person who has had chicken pox (also caused by Varicella Zoster), the virus lies dormant in n

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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