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For people with Down syndrome, family members, caregivers and professionals.

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Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome Virtual Forum (9/26/2024)

Author: Brian Chicoine, MD, Seth Keller, MD, and Amy Kolb-Tucker - Stanford University School of Medicine, the Stanford Alzheimer's Disease Research Center, and National Task Group for Intellectual Disabilities and Dementia Practices

On September 26, 2024, a virtual forum on Alzheimer's disease and Down syndrome was held. Title:  Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome: Opp

How to Show I am Calm Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below explain what we can do to show that we are calm. There are versions with and without check boxes. The version with check boxes can be used as part of a reward system (e.g., if

Boundaries Visual

Author: Abby Rowley, LCSW and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Boundaries Visual   Boundaries Boundaries are a line you do not cross without permission. There are three types:    1. Personal Boundaries Personal space and what type of to

Tips for Living with Housemates

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

Tips for Living with Housemates     This handout describes what we can do to be good housemates. The first page is a summary. The subsequent pages share more information for each tip

Social Media Checklists

Author: Kayla Millan, OTS, Emma Jacobs, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Social Media Checklists   The document linked above contains 3 social media checklists:  Social Media Safety - A list of steps to take to increase your safety online. Exampl

Resources on Phone, Social Media, and Internet Safety and Etiquette

Author: Adult Down Syndrome Center - Resource List

Making Good Choices on our Phones, Social Media, and the Internet     Rules for Phone Use   Rules for Social Media Use   What I Can Share on Social Media  

Making Good Choices on our Phones, Social Media, and the Internet

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Making Good Choices on our Phones, Social Media, and the Internet     Should we share a post, comment, message, picture, or video? Before sharing something, we should:  1. S

Tips for Successful Video Calls

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Tips for Successful Video Calls     Remember:  Video calls like Zoom are public spaces. This means that other people can see or hear what we do, say, and show.  Fin

Rules for Phone Use

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Rules for Phone Use     Remember that phones are a public space. If you do not know the number, let the call go to voicemail. Make sure to call and text at a reasonable hour. Wait fo

Rules for Social Media Use

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Rules for Social Media Use   I should have ONE account per social media platform. Account settings should be private. Location settings should be turned OFF on all apps. If I would not show i

What I Can Share on Social Media

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

What I Can Share on Social Media   Questions to ask myself before I share... Why do I want to share this? Have I already shared something today? Will people want to see my post?   Wh

Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical

Common Mental Health Disorders and Cognitive Decline in a Longitudinal Down Syndrome Cohort

Author: Idris et al. - BJPsych Open

Abstract Background:  Down syndrome is the most common genetic cause of intellectual disability and Alzheimer's disease. In the general population, common mental disorders (CMDs), inc

How to Plan a Date

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

There are many things to think about when planning a date such as who you will ask, when and where you will go, how much it will cost, and how you will get to and from the date. The handouts below can

Self-Talk Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals under the headers explain what self-talk is and why we use it. Tap or click on the headers to find printable versions for girls/women and boys/men. There are also versions for dif

Getting an EEG Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting an EEG visual  explains what happens when we have an electroencephalogram (EEG) done. It can help individuals with Down syndrome know what to expect when going for an EEG. Additi

Friendship Resources

Author: Adult Down Syndrome Center - Resource List

Our Resource Library has several resources on developing and maintaining healthy friendships for individuals with Down syndrome and their families and caregivers. Having meaningful relationships can p

Weight Loss and Alzheimer's Disease in Down Syndrome

Author: Fleming et al. - Journal of Alzheimer's Disease

Abstract Background:  Virtually all adults with Down syndrome (DS) develop Alzheimer's disease (AD) pathology, but research gaps remain in understanding early signs of AD in DS. Objec

Plan For Managing My Emotions

Author: Adult Down Syndrome Center - Visual Handout

When we talk about emotions during our social skills groups for adolescents and adults with Down syndrome, we explain that it is ok to feel any emotion; however, it is not ok to have negative

Things I Can Do to Help Me Calm Down

Author: Adult Down Syndrome Center

This visual handout shares activities you can do to help yourself calm down.

Stop, Think, Make a Good Choice - Conflict

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW

This visual handout from our social skills group explains what to do when there is a conflict.

Managing Conflict

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

Being able to manage conflict effectively is an important skill for having healthy relationships. The handouts pictured and linked below are from our social skills groups for individuals with Down syn

"I" Statements

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

"I" statements are a way to share how we feel in a clear, calm, and respectful way. The handouts pictured below explain the components of "I" statements. There is a

Alzheimer's Disease Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The stories linked below were developed to help individuals with Down syndrome understand what Alzheimer's disease is and how Alzheimer's disease may affect someone i

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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