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For people with Down syndrome, family members, caregivers and professionals.

Duration: 26 ms, Number of Results: 31

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Assessment and Diagnosis of Down Syndrome Regression Disorder: International Expert Consensus

Author: Santoro et al. (2022) - Frontiers in Neurology

Abstract Objective:  To develop standardization for nomenclature, diagnostic work up and diagnostic criteria for cases of neurocognitive regression in Down syndrome. Background:  The

Evidence of Neuroinflammation and Immunotherapy Responsiveness in Individuals with Down Syndrome Regression Disorder

Author: Santoro et al. (2022) - Journal of Neurodevelopmental Disorders

Abstract Background:  Down syndrome regression disorder is a symptom cluster consisting of neuropsychiatric regression without cause. This study evaluated the incidence of neurodiagnostic abn

Story About Body Changes for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains how our bodies change as we get older.

Story About Grooming/Hygiene for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

Story About Body Changes for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains how our bodies change as we get older.

Story About Grooming/Hygiene for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

Story About Privacy - Female

Author: Adult Down Syndrome Center

This social story talks about privacy using pictures appropriate for women.

Story About Privacy - Male

Author: Adult Down Syndrome Center

This social story talks about privacy using pictures appropriate for men.

Story About Consent

Author: Katie Frank, PhD, OTR/L

This visual handout explains what consent is and why it is important in relationships.

Stories About Masturbation

Author: Katie Frank, PhD,OTR/L - Occupational Therapist, Adult Down Syndrome Center

The social stories below explain what masturbation is for males and females. Tap or click on the images to view the visuals. There are options for lighter and darker skin tones.  Story About

Conversation Skills in Romantic Relationships

Author: Adult Down Syndrome Center

Learn why conversation skills are important in romantic relationships.

Handling Rejection

Author: Adult Down Syndrome Center

This visual talks about what rejection is, gives examples of rejection, and provides ways to handle rejection.

Parents as Primary Sexuality Educators for Adolescents and Adults With Down Syndrome

Author: Frank & Sandman - American Journal of Sexuality Education (2021)

Abstract Limited research exists on the effectiveness of in-person workshops to help parents talk about sexuality. This study utilizes a parallel mixed methods design to examine the impact of the&

Breaking Up

Author: Adult Down Syndrome Center

This handout discusses when and how to end romantic relationships.

Compromise

Author: Adult Down Syndrome Center

This handout explains compromise and why it is important for healthy relationships.

How to Plan a Date

Author: Adult Down Syndrome Center

In this visual, Cristina and Jacob explain the steps of planning a date.

Sharing Touch and Affection

Author: Adult Down Syndrome Center

Learn about the "rules" for sharing touch and affection in romantic relationships in this visual handout.

Ingredients for a Successful Relationship

Author: Adult Down Syndrome Center

This handout describes the importance of good communication and positive interactions for having successful relationships.

Down Syndrome Disintegrative Disorder: A Clinical Regression Syndrome of Increasing Importance

Author: Rosso et al. - Pediatrics (2020)

Abstract Down syndrome disintegrative disorder (DSDD), a developmental regression in children with Down syndrome (DS), is a clinical entity that is characterized by a loss of previously acquired adapt

What is Death?

Author: Adult Down Syndrome Center

This handout talks about death. It describes what it is and how it might make us feel.

Let's Talk about Death: A Booklet about Death and Funerals for People with Down's Syndrome

Author: Down's Syndrome Scotland

This booklet for individuals with Down syndrome explains death using easy-to-read language. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

Unexplained Regression in Down Syndrome: 35 Cases from an International Down Syndrome Database

Author: Santoro et al. - Genetics in Medicine (2019)

Abstract: Purpose:  An entity of regression in Down syndrome (DS) exists that affects adolescents and young adults and differs from autism spectrum disorder and Alzheimer disease.  M

Cancer Screening in Adults with Down Syndrome: A Proposal

Author: Rethore, Rousse, Satge - European Journal of Medical Genetics (2019)

Abstract Background : The specific distribution of cancers in Down syndrome (DS) calls into question the validity of screening policies for cancer surveillance as implemented for the general populatio

Catatonia in Down Syndrome: Systematic Approach to Diagnosis, Treatment and Outcome Assessment Based on a Case Series of Seven Patients

Author: Miles, Takahashi, Muckerman, Nowell, Ithman - Neuropsychiatric Disease and Treatment - 2019

Abstract Objective:  The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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