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For people with Down syndrome, family members, caregivers and professionals.

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Duration: 7 ms, Number of Results: 53

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When Things in My Life Change Story

Author: Abby Rowley, LCSW and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

When Things in My Life Change   This visual story discusses how to manage changes that may occur throughout our lives. Additional visuals are available in the  Transitions  

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When Staff Members Leave Story

Author: Abby Rowley, LCSW, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

When Staff Members Leave   This visual story explains why staff members may leave their job, how we might feel, and how to cope with the change. Additional visuals are available in the&nb

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Healthy Snacks Visual

Author: Mandy Fila, MS, RD, CDCES, LDN - Registered Dietician, Advocate Medical Group

Healthy Snacks Visual     We can make healthy snacks with: Vegetables Fruit Whole grains Protein Healthy fats   We can measure our snacks to make sure we do not eat too much

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Coping with Grief Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visual below explains how we might feel when someone we care about dies and shares things we can do to help us cope.    Coping with Grief       &nb

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When a Pet Dies Visual

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

This visual explains what happens when a pet dies and how it might make us feel. When a Pet Dies     Other visuals are available in the Grief and Loss section of our Resource Library

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Nutrition and Hydration Apps

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

There are numerous factors to consider when deciding what to eat and drink including nutritional content, dietary restrictions and allergies, convenience, cost, and taste preferences. The apps listed

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Incidence and Clinical Outcomes of Pneumonia in Persons with Down Syndrome in the United States

Author: Janoff et al. - Vaccine (2023)

Abstract Background:  Persons with Down syndrome (DS) experience an increased risk of pneumonia. We determined the incidence and outcomes of pneumonia and relationship to underlying comorbidi

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Water Trackers

Author: Adult Down Syndrome Center - Visuals

The visuals below can be used to track how much water we drink each day. There are three versions: 8 oz. cups, 16 oz. water bottles, and 24 oz. water bottles. 8 oz. cups   16 oz. water bottle

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Moving to a Group Home Story

Author: Michele Mattox, LCSW, LISW-CP - No Limits Counseling & Coaching

The story linked below talks about moving to a group home, including how to deal with new emotions and managing a schedule. Moving to a Group Home     The story was created

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Getting an EEG Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting an EEG visual  explains what happens when we have an electroencephalogram (EEG) done. It can help individuals with Down syndrome know what to expect when going for an EEG. Additi

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Weight Management Recommendations for Youth with Down Syndrome: Expert Recommendations

Author: Ptomey et al. - Frontiers in Pediatrics (2023)

Abstract Youth with Down syndrome (DS) have a higher prevalence of overweight and obesity compared to the general youth population. Due to physiological and cognitive differences observed in youth wit

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Diabetes and Obesity in Down Syndrome Across the Lifespan: A Retrospective Cohort Study Using U.K. Electronic Health Records

Author: Aslam et al. - Diabetes Care (2022)

Abstract Objective:  Down syndrome (DS) is the most common form of chromosomal trisomy. Genetic factors in DS may increase the risk for diabetes. This study aimed to determine whether DS is a

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Drinking a Glass of Water Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist

We often encourage individuals with Down syndrome who come to our clinic to drink more water. This recommendation can be interpreted in different ways. One individual with Down syndrome who heard this

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Water Tracker

Author: Adult Down Syndrome Center

This handout can be used to mark off how much water you drink each day.

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Guide to Healthy Eating

Author: Adult Down Syndrome Center

This handout uses a stoplight to help individuals with Down syndrome know what foods to eat everyday (green), sometimes (yellow), and on special occasions (red).

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Guide to Healthy Drinking

Author: Adult Down Syndrome Center

This handout uses a stoplight to help individuals with Down syndrome know what drinks to consume everyday (green), sometimes (yellow), and on special occasions (red).

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Epilepsy in Down Syndrome: A Highly Prevalent Comorbidity

Author: Altuna, Gimenez, & Fortea - Journal of Clinical Medicine (2021)

Abstract Individuals with Down syndrome (DS) have an increased risk for epilepsy during the whole lifespan, but especially after age 40 years. The increase in the number of individuals with DS living

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Healthy Pace for Eating Handout

Author: Adult Down Syndrome Center

This visual shows steps to take to have a healthy pace for eating. Take a bite, put the fork down, chew 5-10 times, swallow the food, take a small drink, pick up your fork and start all over.

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Pneumonia and Respiratory Infections in Down Syndrome: A Scoping Review of the Literature

Author: Santoro et al. - American Journal of Medical Genetics Part A (2020)

Abstract Pneumonia and respiratory infections impact infants and children with Down syndrome; pneumonia is a leading cause of mortality in adults with Down syndrome. We aimed to review the literature

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What is Death?

Author: Adult Down Syndrome Center

This handout talks about death. It describes what it is and how it might make us feel.

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Tips for Eating Healthy Meals

Author: Adult Down Syndrome Center

This handout provides 6 ways to make healthier choices for meals. Eating healthy meals helps us do our best at home, school, work, and in the community.

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Staying Hydrated

Author: Adult Down Syndrome Center

This handout explains why it is important to drink water and stay hydrated.

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Drinking Water

Author: Adult Down Syndrome Center

This handout explains how much water we should drink each day.

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Let's Talk about Death: A Booklet about Death and Funerals for People with Down's Syndrome

Author: Down's Syndrome Scotland

This booklet for individuals with Down syndrome explains death using easy-to-read language. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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