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For people with Down syndrome, family members, caregivers and professionals.
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We received a question about treatment of keratoconus in people with Down syndrome. What is keratoconus? Keratoconus is an eye condition in which the cornea (the clear part in the front of t
Contingency maps can help an individual visualize their behavioral choices and the outcomes/consequences of their behaviors. They can help make the problem-solving process more concrete. The individua
The handouts linked below were developed to teach individuals with Down syndrome how to think more positively. If an individual has an automatic negative thought (or ANT), they can squish it or brush
There are many things that might make us feel stressed. My Stress Triggers gives examples of things that might make us feel stressed. What causes you to feel st
Coping with stress is an important and necessary part of life. There are some strategies that can help us manage our reactions to different life stressors. The steps below are strategies that I use wi
The video below is a recording of a webinar presented by Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW, on February 23, 2023. In this webinar, the presenters define, iden
Regression in Persons with Down Syndrome: Current Consensus Update for Families In January 2023, the Down Syndrome Medical Interest Group - USA (DSMIG-USA) shared a consensus update for fam
*This article was adapted from Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges, 2nd Edition. What is attention-deficit/hyperactivit
What is obsessional slowness? Obsessional slowness is an apparent form of obsessive-compulsive disorder that appears to be more common in people with Down syndrome. At this point, much more needs to b
When we talk about emotions during our social skills groups for adolescents and adults with Down syndrome, we explain that it is ok to feel any emotion; however, it is not ok to have negative
A complication of having COVID-19 infection is a condition called long COVID (it has also been called long-haul COVID, chronic COVID, post-COVID conditions, and others). The National Task Group on Int
This visual handout shares activities you can do to help yourself calm down.
"I" statements are a way to share how we feel in a clear, calm, and respectful way. The handouts pictured below explain the components of "I" statements. There is a
UPDATED 9/9/2022 The physicians of the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follow the recommendations of
The video below is a recording of a webinar presented by Brian Chicoine, MD of the Adult Down Syndrome Center. Individuals with Down syndrome may experience decline in skills for many reasons
Electroconvulsive therapy (ECT) is a treatment that involves sedating an individual with anesthesia and then inducing a seizure with a short electrical stimulation of the brain (more information can b
Post-traumatic stress disorder (PTSD) is a mental health condition in which an individual develops psychological symptoms in response to an extremely distressing experience. The symptoms can vary and
Every thorough mental health assessment should include an assessment of physical health to ensure that physical health problems are not affecting mental well-being in any way. This is true whether or
We have only seen or heard of a few cases of severe COVID-19 infection in our patients with Down syndrome who have received COVID-19 vaccines. Our experience has been consistent with the data
A parent of an individual with Down syndrome asked a question about stereotypies and self-stimulatory behavior. The parent shared that the individual made noises while watching videos on their iPad an
We received a question from a family member of an individual with Down syndrome who is anxious and fearful of bad weather, particularly thunderstorms. Thunder, lightning, strong winds, heavy rain, hai
We have shared both our clinical experience and studies that demonstrate clinical effectiveness and safety of COVID-19 vaccines in people with Down syndrome. However, until recently, studies have not
Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical
EyeWiki is an Eye Encyclopedia developed by the American Academy of Ophthalmology with content contributed by ophthalmologists (eye physicians and surgeons). There is a Down syndrome page wit
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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