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321go! Guide

Author: National Down Syndrome Society - Healthy Living Resource

321go! is a resource provided by the National Down Syndrome Society (NDSS). The guide is "a fun and easy set of 3 daily goals and 21 challenges that can help you make healthy choices"

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Taking My Thyroid Medication Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Several endocrine conditions, including hypothyroidism (underactive thyroid), are more common in people with Down syndrome compared to people without Down syndrome. Levothyroxine (Synthroid, Tirosint,

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Decline in Skills and Regression in Adolescents and Adults with Down Syndrome Webinar Recording (8/31/2022)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD of the Adult Down Syndrome Center. Individuals with Down syndrome may experience decline in skills for many reasons

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Constipation in Down Syndrome

Author: Samantha Ghanayem-Bouikidis, MD and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Video Watch a video clip about constipation  from our webinar At-Home Treatments for Common Health Conditions.   Constipation is a common problem in people with Down syndrom

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Drinking a Glass of Water Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist

We often encourage individuals with Down syndrome who come to our clinic to drink more water. This recommendation can be interpreted in different ways. One individual with Down syndrome who heard this

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Development of Atlantoaxial Instability in an Older Person with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The parent of a 47-year-old man with Down syndrome submitted the following question: Can a person with Down syndrome develop atlantoaxial instability in adulthood? My son is 47. When he was younger, X

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Using First/Then Boards

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

We like to use visual supports to set or manage expectations. One type of visual support that can be helpful is a first/then board. When using a visual support, there can be words, pictures, or a comb

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Medications for Weight Loss

Author: Brian Chicoine, MD - "Ask Dr. Chicoine" LuMind IDSC Foundation

The parent of an individual with Down syndrome asked a question about medications to treat obesity in a person who has not been significantly successful with diet and exercise despite many efforts. I

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Electroconvulsive Therapy, Catatonia, and Regression in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Electroconvulsive therapy (ECT) is a treatment that involves sedating an individual with anesthesia and then inducing a seizure with a short electrical stimulation of the brain. ECT can be frightening

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Visits to a Doctor's Office

Author: Adult Down Syndrome Center - Visual

Visits to a Doctor's Office   When I have a doctor's appointment, I will... leave the house get out of the car sit in the waiting room go with the nurse when they call my name

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Individualized Visual Schedules

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Visuals tend to be most effective when they are individualized. What works for one person may be different than what works for another person. Schedules are one example of a type of visual that may va

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Toilet Hygiene

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Thorough toilet hygiene is difficult for many individuals with Down syndrome. However, there are several options to increase independence and success with toilet hygiene. Use pre-moistened wipes . Be

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Overview and Types of Respite

Author: Ann Garcia - Patient Advocate, Adult Down Syndrome Center

Respite care is short-term relief for primary caregivers. It can be used for as short as a few hours to as long as several weeks. Respite care can be provided in a variety of settings including the in

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Respite Organizations and Providers

Author: Ann Garcia - Patient Advocate, Adult Down Syndrome Center

The list below includes information about respite organizations and providers in the greater Chicagoland area and/or Illinois. The types of respite provided are also included: In-Hom

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Post-Traumatic Stress Disorder

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Post-traumatic stress disorder (PTSD) is a mental health condition in which an individual develops psychological symptoms in response to an extremely distressing experience. The symptoms can vary and

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Tips for Managing Medications

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

Whether on one medication or many, people with and without Down Syndrome have difficulty taking medication as prescribed. The following tips can help simplify medication management and prevent missed

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Tips for a Sensory-Friendly Haircut

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

While many find a trip to the salon or barbershop relaxing and look forward to their new look, getting a haircut can be an uncomfortable and even frightening experience for those with sensory

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Impact of Physical Health Conditions on Mental Health

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Every thorough mental health assessment should include an assessment of physical health to ensure that physical health problems are not affecting mental well-being in any way. This is true whether or

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Therapeutic Use of Games

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

While games are widely considered to be a meaningful and enjoyable activity, their therapeutic benefits can be easily overlooked. Games provide opportunities to work on a wide variety of skills we use

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Bunions in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

A bunion (also known as hallux valgus) is a bony projection or bump that forms at the base of the big toe. If the joint at the base of the big toe is subjected to great pressure while walking, the big

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Sunscreen Use

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When the summer months approach, many of us stock up on sunscreen and other products to protect our skin from the sun. While we tend to associate sun exposure with the warmer seasons, we need to prote

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Adult Sibling Toolkit

Author: National Down Syndrome Congress - Resource

The Adult Sibling Toolkit  from the National Down Syndrome Congress is a tool for adult siblings who are preparing to become more involved in the support and care of their loved ones with Dow

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Using Games in Social Skills Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

We have found that incorporating games into our social skills groups can help convey important messages as well as help participants practice appropriate social skills in a non-threa

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Fun Activities to Improve Fine Motor Skills

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

We use fine motor skills to complete any task that requires using the small muscles in our hands or wrists. This includes a wide variety of daily activities completed at home, work, and school: using

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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