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Resources

For people with Down syndrome, family members, caregivers and professionals.

Visuals for Medical Appointments

May 2023 | Adult Down Syndrome Center - Resource List

Visuals can help individuals with Down syndrome prepare for and know what to expect at medical appointments. Our Resource Library has several examples. 
 

Visits to the Doctor

 

Taking Charge of My Appointment opens in new window is a visual that is intended to be started before the appointment, used during the appointment, and completed after the appointment. 

Taking charge of my appointment visual

Self-Advocacy at Medical Appointments opens in new window is a printable worksheet that individuals with Down syndrome can fill out before an appointment. It was developed by the National Down Syndrome Society. 

NDSS self-advocacy at medical appointments

My Health Passport opens in new window is a document that individuals with Down syndrome and their families can fill out to share information (such as communication preferences, how to offer support in stressful situations, etc.) with health care providers. It was developed by the Florida Center for Inclusive Communities.

My_Health_Passport

Visits to a Doctor's Office opens in new window is a one-page visual that starts with leaving the house and ends with meeting with the doctor in the exam room.

Visits to a doctor's office

 

Procedures and Tests

My ECG/EKG opens in new window may be helpful for cardiology appointments that include having an electrocardiogram done.

My ECG EKG

Getting My Blood Drawn explains what happens when we have a blood test done.

Getting my blood drawn

Getting Ear Wax Removed explains what happens when we have our ears cleaned out.

Getting_ear_wax_removed

Getting an X-Ray is a general visual that can be used when getting x-rays of various parts of the body. 

Getting an  xray visual

Getting an Ultrasound is a general visual that can be used when getting ultrasounds of various parts of the body. 

getting_an_ultrasound_visual

Getting an EEG explains electroencephalograms (EEGs), tests that measure electrical activity in the brain. 

Getting an eeg

LuMind IDSC Foundation developed a "What to Expect?" Toolkit opens in new window that includes videos and social stories about having an MRI and having a PET scan. 

LuMind_What_to_Expect_Toolkit

MRI Video opens in new window

MRI Social Story opens in new window

PET Scan Video opens in new window

PET Scan Social Story opens in new window

 

Other types of visual supports, including those described in this Use of Visual Supports article, may also be helpful. For example, a First/Then visual could be used to set expectations for the appointment (e.g., First, go to doctor's appointment. Then, watch a movie). 

Find More Resources

We offer a variety of resources for people with Down syndrome, their families and caregivers and the professionals who care for and work with them. Search our collection of articles, webinars, videos, and other educational materials.

View Resource Library

 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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