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Resources

For people with Down syndrome, family members, caregivers and professionals.

Trisomy 21 Toolkit for Transitioning to Adult Medical Care

July 2017 | Children's Hospital of Philadelphia - Trisomy 21 Toolkit for Transitioning to Adult Medical Care

The Trisomy 21 Toolkit for Transitioning to Adult Medical Care opens in new window outlines steps individuals with Down syndrome or other intellectual disabilities can take toward building independence, planning for the future, and transitioning to adult healthcare providers. 

The toolkit includes a collection of worksheets for individuals with Down syndrome to help with the transition: 

  • Transition Timeline

  • Letter to Your Doctor

  • Readiness Checklist

  • My Goals

  • About Me

  • My Medical Issues

  • Healthcare Plan

  • Preparing for a Doctor Visit

  • The Day of the Doctor Visit

  • How Did Your Doctor Visit Go?

  • Financial Considerations

  • Legal Planning and Social Service Support

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We offer a variety of resources for people with Down syndrome, their families and caregivers and the professionals who care for and work with them. Search our collection of articles, webinars, videos, and other educational materials.

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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