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For people with Down syndrome, family members, caregivers and professionals.

Working with Healthcare Providers: Giving a Voice and Supporting Adults with IDD

October 2023 | Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Brian Chicoine, MD, presented a webinar called "Working with Healthcare Providers: Giving a Voice and Supporting Adults with Intellectual and Developmental Disabilities" on October 5, 2023.

Description: Many adults with intellectual disabilities (ID) find it challenging to find a health care provider who is knowledgeable and willing to provide high quality medical care. Most health care providers receive little to no training on the medical needs of individuals with ID. In addition, there are a variety of forms of bias in our health care system that contribute to inadequate care. These challenges can be particularly problematic when seeking an assessment for an older person with ID who has declining cognition and/or function. Under these circumstances, how can people with ID get access to optimal health care? In this presentation, Brian Chicoine, MD, discusses strategies for collaborating with health care providers to improve the health care of people with ID. He discusses best practices for working with individuals with ID in health care settings and shares resources about health and wellness including assessing cognitive and functional decline. 


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The webinar was hosted by ONEgeneration and the National Task Group on Intellectual Disabilities and Dementia Practices and supported by the UniHealth Foundation. The webinar is available in the ONEcaregiver Resource Center, a centralized platform to support caregivers and adults with intellectual and developmental disabilities who may be at risk of, or are living with, Alzheimer's disease or related dementia.


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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.