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Adult Down Syndrome Center FAQs

Frequently asked questions

FAQ

FAQ Categories

General Information

Questions & Answers

General Information

Where is the Adult Down Syndrome Center located?

We are located at 1610 Luther Lane in Park Ridge, Illinois. Our clinic is on the campus of Advocate Lutheran General Hospital. Our phone number is 847-318-2303. Our fax number is 847-318-2377.

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Do you accept new patients from outside the state of Illinois?

No. For more information, please see our out of state policy

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At what age do you start seeing patients?

We see patients who are 12 years of age and older.

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How can I schedule an appointment at the Center?

Individuals with Down syndrome who live in Illinois and are age 12 or older may schedule an appointment by calling our office at (847) 318-2303. Our patient advocate Ann Garcia completes the intake process for new patients. Our phone hours are 8am to 5pm (CT) and our appointment hours are 9am to 4:30pm (CT).

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How can I find a Down syndrome clinic near me or healthcare providers with experience in caring for individuals with Down syndrome?

The Global Down Syndrome Foundation and the National Down Syndrome Congress websites have listings of Down Syndrome Medical Care Centers in the United States (organized by state). If there is a clinic near you but adults are not seen by its providers, the clinic may be able to recommend a healthcare provider in the area who sees adults. The Global listing can be found at this link The preceding link opens in a new page or window. and the NDSC listing can be found at this link The preceding link opens in a new page or window..

Another option is to reach out to a Down syndrome organization in your area. Their staff and/or member families may be able to point you to healthcare providers with experience in caring for individuals with Down syndrome and/or recommend providers with whom they have had good experiences. The Global Down Syndrome Foundation and National Down Syndrome Congress also have listings of Down syndrome organizations in the United States (organized by state). The Global listing can be found at this link The preceding link opens in a new page or window.. The NDSC listing can be found at this link The preceding link opens in a new page or window..

If you are working with a new healthcare provider, we recommend that you share information about the Down Syndrome Medical Interest Group (DSMIG-USA) The preceding link opens in a new page or window., the GLOBAL Medical Care Guidelines for Adults with Down Syndrome, and our online Resource Library.

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Do you accept new patients with intellectual disabilities other than Down syndrome?

No. Due to patient volume, we do not accept new patients with intellectual disabilities other than Down syndrome. 

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What if I have a question about a health topic that is not included in your resources?

Please fill out our contact form. We cannot provide information/advice specific to a particular individual; however, we can identify existing or create new resources related to the question/topic. 

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How can I learn about upcoming events, classes, and programs?

Please sign-up for our e-mail newsletter The preceding link opens in a new page or window. and/or like us on Facebook The preceding link opens in a new page or window.. We share information on health topics for teens and adults with Down syndrome, updates on research and education, as well as information about upcoming events, classes, and programs.

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I am interested in starting groups like yours in my area. Who can I speak to for more information about your groups?

Please fill out our contact form and we will direct your questions to the appropriate staff at the Adult Down Syndrome Center. 

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How is the Resource Library funded?

The Resource Library is made possible through the support of our health care organization Advocate Aurora Health and other generous donors, including Orange County Community Foundation and LuMind IDSC Foundation.

If you would like to support the Resource Library, please click here to make a donation.

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Contact Us

We cannot give advice about a specific individual’s medical conditions without an evaluation. However, we can provide general educational material about health topics. This is not a secure patient portal and, therefore, we do not recommend sharing private health information. We recommend you review this educational material with your health practitioner regarding the specifics of your health care needs. 

Please note that these questions are not monitored 24/7. You can expect a response within about one week of submitting. 

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