FAQ

Where is the Adult Down Syndrome Center located?

 

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Do you accept new patients from outside the state of Illinois?

No. For more information, please see our out of state policy . 

 

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At what age do you start seeing patients?

We see patients who are 12 years of age and older.

 

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How can I schedule an appointment at the Center?

Individuals with Down syndrome who live in Illinois and are age 12 or older may schedule an appointment by calling our office at (847) 318-2303. Our patient advocates complete the intake process for new patients. Our phone hours are 8:30 a.m. to 5 p.m. (CT) and our appointment hours are 9 a.m. to 4:30 p.m. (CT).

 

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Do you accept new patients who do NOT have Down syndrome?

No. Due to patient volume, we do not accept new patients who do not have Down syndrome. 

 

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How can I learn about upcoming events, classes, and programs?

Please sign-up for our e-mail newsletter  and/or like us on Facebook . We share information on health topics for teens and adults with Down syndrome, updates on research and education, as well as information about upcoming events, classes, and programs.

 

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I am interested in starting groups like yours in my area. Who can I speak to for more information about your groups?

Please fill out our contact form and we will direct your questions to the appropriate staff at the Adult Down Syndrome Center. 

 

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How can I find a Down syndrome clinic near me or health care providers with experience in caring for individuals with Down syndrome?

Several national Down syndrome organizations maintain lists of Down syndrome clinics in the United States. If there is a clinic near you but adults are not seen by its providers, the clinic may be able to recommend primary care providers and specialists who see adults. 

GLOBAL Down Syndrome Foundation Clinic List 

National Down Syndrome Congress Clinic List 

National Down Syndrome Society Clinic List 

If there is not a clinic near you, we recommend reaching out to a Down syndrome organization in your area. Their staff and/or member families may be able to point you to healthcare providers with experience in caring for individuals with Down syndrome and/or recommend providers with whom they have had good experiences. 

GLOBAL Down Syndrome Foundation Organization List 

National Down Syndrome Congress Organization List 

National Down Syndrome Society Organization List 

If you are working with a new health care provider, we recommend that you share information about the Down Syndrome Medical Interest Group (DSMIG-USA) , the GLOBAL Medical Care Guidelines for Adults with Down Syndrome, and our online resources.

 

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What if I have a question about a health topic that is not included in your resources?

Please fill out our contact form. We cannot provide information/advice specific to a particular individual; however, we can identify existing or create new resources related to the question/topic. 

 

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How is the Resource Library funded?

The Resource Library is made possible through the support of our health care organization Advocate Aurora Health and other generous donors, including Orange County Community Foundation and LuMind IDSC Foundation.

If you would like to support the Resource Library, please click here to make a donation.

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