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For people with Down syndrome, family members, caregivers and professionals.

Duration: 48 ms, Number of Results: 353

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"I" Statements

Author: Adult Down Syndrome Center

"I" statements can be used to share how you feel in a clear and non-confrontational way.

"Self-Talk" in Adults with Down Syndrome

Author: Dennis McGuire, PhD; Brian Chicoine, MD; & Elaine Greenbaum, PhD - Disability Solutions (July/August 1997)

The article linked below was published in the July/August 1997 edition of  Disability Solutions  and describes "self-talk" in adults with Down syndrome.  http://downsyndromenutrition.com/images/stories/dsolnsvol2/2-2.pdf

10 Tips for Surviving the Holidays

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It’s holiday time and many people are busy decorating, baking cookies, shopping, and planning family celebrations. There are often significant changes in routine and breaks from school or day programs. There are visits with relatives who may be unfamiliar. Siblings who have moved out retur

2020 Healthy Choices Calendar

Author: Adult Down Syndrome Center

Make healthy choices throughout 2020 with our Healthy Choices calendar. Each month has space to write goals and activities related to a variety of health topics.

A Center for Adults and Adolescents with Down Syndrome

Author: Chicoine, McGuire, Dominiak, Bilodeau, & Chicoine

An article written to celebrate the 20th anniversary of the opening of the Adult Down Syndrome Center of Advocate Lutheran General Hospital and Advocate Medical Group

Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? Many organizations - including the Adult Down Syndrome Center - have compiled lists of ideas. Please see the links below!  Adult Down Syndrome Center 21 Healthy Ways to Celebrate WDSD (they apply all year long!) -  l

Adaptive Shoes

Author: Adult Down Syndrome Center

Recommendations for adaptive shoes and shoelaces that make it easier for people with Down syndrome to get their shoes on and off.

Addressing Challenges with Falling or Staying Asleep

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

We frequently receive questions about sleep. Individuals with Down syndrome and/or their families report that they have difficulty falling asleep or staying asleep. In this article, we will share strategies to help individuals with Down syndrome: fall asleep, avoid waking up in the middle of the nig

Adult Sibling Toolkit

Author: National Down Syndrome Congress - Resource

This resource from the National Down Syndrome Congress is a tool for adult siblings who are preparing to become more involved in the support and care of their loved ones with Down syndrome.  https://www.ndsccenter.org/programs-resources/adult-siblings/

Advance Directives - Forms for Illinois Residents

Author: Illinois Department of Public Health - Website

An advance directive is a written statement you prepare that expresses how you want medical decisions made in the future should you not be able to make them yourself. Illinois law allows you to make four types of advance directives: a health care power of attorney; a living will; a mental h

Affordable Sensory Equipment

Author: Katie Frank, PhD, OTR/L

In this handout, our occupational therapist provides recommendations for affordable sensory equipment .

Aggressive Behavior and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

I received the question below:  I am writing to you for advice on how to handle extreme aggressive behavior my 48-year-old son has been displaying. This has been going on now for over a year and it continues to get worse. I have contacted my local regional center and Down syndrome associati

Aging and Down Syndrome: A Health & Well-Being Guidebook

Author: National Down Syndrome Society - Resource

The resource linked below is a guidebook from the National Down Syndrome Society . According to the Introduction, "Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can se

Aging and Life Expectancy

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Did you know that in 1900 the life expectancy of people with Down syndrome was 9 years? Since then the life expectancy of people with DS has increased to about 60 years. If people without DS had increased by the same percentage since then, the life expectancy of people without DS would be about 350

Alopecia

Author: Naomi Roman, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Several autoimmune diseases are more prevalent in people with Down syndrome (DS) including alopecia areata, a chronic immunological disorder that targets hair follicles and causes hair loss. When a person has alopecia areata, their body produces antibodies which attack healthy hair follicles. Typica

Alternatives to Workshops

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

Some of these resources are specific to the greater Chicagoland area and/or Illinois. If you are looking for resources in another region, we recommend reaching out to a local Down syndrome parent organization. Click one of the four links below to jump to that category of resources.   Specia

Alzheimer's Disease & Down Syndrome: A Practical Guidebook for Caregivers

Author: National Down Syndrome Society - Resource

The guidebook linked below was published by the National Down Syndrome Society "to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer's disease, suggestions about how to carefully and thoughtfully evaluate changes that may be

Alzheimer's Disease Among People with Down Syndrome Presentation (11/28/2017)

Author: Dan Kuhn, LCSW - Vice President of Education at All Trust Home Care

The video below is a recording of a presentation given by Dan Kuhn, LCSW, Vice President of Education at All Trust Home Care, at the Adult Down Syndrome Center on November 28, 2017. He covered a variety of topics related to Alzheimer's disease (AD) including diagnosing and treating AD, preva

Alzheimer's Disease in Down Syndrome Presentation (2/26/2019)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a presentation called "Alzheimer's Disease in Down Syndrome" given by Brian Chicoine, MD on February 26, 2019. He provides an overview of Alzheimer's disease in adults with Down syndrome and covers topics including symptoms, diagnos

Alzheimer's Disease Video Journal Segment 1

Author: Adult Down Syndrome Center - Video Journal

The video below is the first segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Collee

Alzheimer's Disease Video Journal Segment 2

Author: Adult Down Syndrome Center - Video Journal

The video below is the second segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Colle

Alzheimer's Disease Video Journal Segment 3

Author: Adult Down Syndrome Center - Video Journal

The video below is the third segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Collee

Alzheimer's Disease Video Journal Segment 4a

Author: Adult Down Syndrome Center - Video Journal

The video below is the fourth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiv

Alzheimer's Disease Video Journal Segment 4b

Author: Adult Down Syndrome Center - Video Journal

The video below is the fourth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiv

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