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For people with Down syndrome, family members, caregivers and professionals.

When Down Syndrome and Autism Intersect (2nd edition)

February 2024 | Margaret Froehlke, RN, BSN, and Robin Sattel, MS - Book (2024)

When Down Syndrome and Autism Intersect: A Guide to DS-ASD for Parents and Professionals opens in new window




Publisher description

The first edition of When Down Syndrome and Autism Intersect was the first book to focus on the unique profile of a Down Syndrome-Autism Spectrum Disorder (DS-ASD) diagnosis. Now with this greatly expanded, updated second edition, it remains the only book offering a comprehensive guide to supporting people with the complex dual diagnosis. Written by a large team of veteran clinicians, parents, and experts in the field, it covers nearly every aspect of supporting individuals with DS-ASD across the lifespan. This important book offers sound information, best practices, and resources steeped in experience, research, and clinical findings. Readers will also encounter compassion, reassurance, guidance, and practical advice, along with a treasure trove of anecdotes that emphasize the joys of loving and caring for individuals with DS-ASD.


Table of contents

Noemi Alice Spinazzi, MD, FAAP
Margaret Froehlke, RN, BSN
Robin Sattel, MS
The Froehlke Family's Journey: An Introduction to DS-ASD
Margaret Froehlke, RN, BSN
Robert Froehlke, MD
The Autism Phenotype
Darren Olsen, PhD
What Autism Looks Like in a Person with Down Syndrome: The Behavioral Phenotype
Deborah Fidler, PhD
Susan Hepburn, PhD
Dennis McGuire, LCSW, PhD
Brian Chicoine, MD
DS-ASD and Primary Care: Pediatric and Adult
Noemi Alice Spinazzi, MD, FAAP
Mary Stephens, MD, MPH
The DS-ASD Diagnostic Evaluation Process: What to Expect
Rudaina Banihani, MD
George Capone, MD
Paige Church, MD
Kathleen Lehman, PhD
Lina Patel, PsyD
Maria Stanley, MD
Guidelines and Indications for Medication Use
Nicole Baumer, MD, MEd
George Capone, MD
Strategies for Successful Dental Care
Lauren A. Lewis, DDS
Behavioral Treatments for Sleep Problems in Individuals with DS-ASD
Terry Katz, PhD
Ann Reynolds, MD
Getting the Most Out of Your Doctor Visits: Advice for Parents and Health Care Providers
Kimberly Bonello, Parent
Lina Patel, PsyD
Laura Pickler, MD, MPH
Understanding Communication, Behavior, and Sensory Strategies
Katarzyna Kowerska, MA, CCC-SLP
Lina Patel, PsyD
Teresa Unnerstall, BS Ed
Katie Frank, PhD, OTR/L
Building Strong Relationships within the School System and Beyond
Julie Hearrell, MA Ed
Leah Martin, PhD
Robin Sattel, MS
Multicultural Considerations and Strategies for DS-ASD
Elina R. Manghi, PsyD, LMFT
The Parents' Journey to DS-ASD
Leah Martin, PhD
Robin Sattel, MS
Sharing Families' Lived Experiences
Margaret Froehlke, RN, BSN
Robin Sattel, MS
Why Parents Require Specialized Support
Robin Sattel, MS
DS-ASD Resources and Navigating the Health Care System
Chiara Jaffe, MPH, MSW, LCSW-C
Additional resources are available in the Autism Spectrum Disorder section of our Resource Library.

Find More Resources

We offer a variety of resources for people with Down syndrome, their families and caregivers and the professionals who care for and work with them. Search our collection of articles, webinars, videos, and other educational materials.

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.