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For people with Down syndrome, family members, caregivers and professionals.
Review our COVID-19 Resources
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UPDATED 10/21/2021 : The CDC shared booster shot recommendations for the Moderna and Johnson & Johnson COVID-19 vaccines. The statement can be found at this link . 10/15/2021 : According to the CDC , you can get a flu vaccine at the same time you get a COVID-19 vaccine, including a COVID-19
UPDATED 10/21/2021 : The CDC shared booster shot recommendations for the Moderna and Johnson & Johnson COVID-19 vaccines. The statement can be found at this link . 9/28/2021 On September 24, 2021, the Centers for Disease Control and Prevention (CDC) updated the recommendations for
Weight management can be challenging. It is likely that part of the reason is that there are factors for which our understanding is limited. While a great deal has been learned, more research is being done to improve our understanding and to learn how that knowledge can be used for improved weight m
We received a question about treatment of keratoconus in people with Down syndrome. What is keratoconus? Keratoconus is an eye condition in which the cornea (the clear part in the front of the eye) becomes thinner and more curved. This causes the cornea to become cone-like in shape and to
We were sent a question about selective mutism and loss of speech. Selective mutism is defined as an anxiety condition in which a person with normal verbal skills is unable to speak in particular settings. For those without an intellectual disability, this is typically described in children but can
What do we like about our friends? As this handout shows, good friends usually use nice words, do kind things, listen, tell the truth, have boundaries, apologize, take turns, and say how they feel.
Swallowing problems (dysphagia) are common in people with Down syndrome (DS). In our large cohort study that reviewed health data from people cared for within Advocate Health, swallowing problems were more than 6 times more common in people with DS compared to people without DS. Some swallowing issu
We sometimes receive questions about dental implants. A small number of people with Down syndrome seen in our office have reported that they opted to get dental implants, and most of these individuals have successfully received dental implants. There are several issues to consider that will increase
In October 2021, the Down Syndrome Medical Interest Group - USA (DSMIG-USA) shared a consensus update for families called "Regression in Persons with Down Syndrome." The resource can be accessed at this link .
This document contains slides from a webinar on promoting mental health and addressing mental health challenges in adolescents and adults with Down syndrome. It was presented by Dr. Brian Chicoine.
The video below is a recording of a webinar called "Promoting Mental Health in Adolescents & Adults with Down Syndrome" presented by Brian Chicoine, MD on September 28, 2021. It was hosted by the Down Syndrome Association of Delaware. The presentation begins at 19 min. 28 s
Are you a person with Down syndrome and you are being prescribed a new medication? Are you assisting a person with Down syndrome with their health care and the individual is being prescribed a new medication? What are some of the things that should be considered? Some general questions to ask before
Abstract: Objectives: To derive and validate risk prediction algorithms to estimate the risk of COVID-19 related mortality and hospital admission in UK adults after one or two doses of COVID-19 vaccination. Design: Prospective, population based cohort study using the QResearch da
On March 1, 2021, a new resource on COVID-19 and Down syndrome was completed by a national consortium of organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA), Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congress (NDSC), Na
Moving our bodies throughout the day can help us be healthy.
Nearly all of us have experienced anxiety during our lives. We may feel anxious about a school exam, a new job, a dentist appointment, a disagreement with a friend, or other similar situations. This is typical. However, if anxiety interferes with our day-to-day lives on a long-term basis, an anxiety
These are the slides from a webinar called "The Groove in People with Down Syndrome" presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L.
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on August 25, 2021. Dr. Chicoine is the medical director at the Adult Down Syndrome Center and Dr. Frank is the occupational therapist at the Center. In this presentation, they discuss the &qu
Managing portion sizes of foods can be challenging for people with and without Down syndrome. Below are some products that may help with portion control. Many of these products can be found at retailers such as Amazon, Bed Bath & Beyond, Target/Walmart, and CVS/Walgreens. Please no
Gout is more common in people with Down syndrome (DS), as indicated by the study at this link and our experience at the Adult Down Syndrome Center. Gout is a type of inflammatory arthritis caused by a build-up of uric acid in the body. People who experience gout typically have an elevated a
We frequently see that the lab values of kidney function of people with Down syndrome (DS) we evaluate at our Center are mildly abnormal. The kidney function is slightly decreased compared to what is reported as "normal" for the population as a whole. This suggests that the kidneys
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight. The man had gotten a COVID-19 vaccine about one month before his symptoms started. His family wonder
Hair loss can occur for many reasons. Some of these may include: Age is a common cause not only for men but for women, too. Alopecia is an autoimmune condition (condition in which the body's immune system attacks another site in the body) that is more common in people with Down syn
This list below includes information about respite organizations and providers in the greater Chicagoland area and/or Illinois. The types of respite provided are also included and color-coded: In-Home Respite Residential Respite Group Respite Voucher Respite An overview of respite care an
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.