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For people with Down syndrome, family members, caregivers and professionals.

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Taking Medication for Side Effects from the COVID-19 Vaccine

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As with all vaccines, there is the potential to experience side effects after getting the COVID-19 vaccine. This is true for people with and without Down syndrome. These side effects may include pain or swelling on the arm where you got the vaccine, fever, chills, tiredness, and/or headache. These s

Visuals and Videos About COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Basic COVID-19 Information By and For People with Disabilities  (Green Mountain Self-Advocates) Coronavirus: What Is It and What Ca

Visuals and Videos About Wearing Masks During COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about wearing masks during COVID-19. We have provided links to some of them below.  VISUALS / STORIES / PLAIN LANGUAGE RESOURCES Wearing a Mask Social Story  (Autism Services, Education, Resources, and Training Collaborative)&

Visuals and Videos About the COVID-19 Vaccine

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine  (Autism and Intellectual Disabilities in Pennsylvania) After Getting the COVID-19 Vaccine &a

When can I get a COVID-19 vaccine?

Author: Adult Down Syndrome Center - COVID-19

Updated:  2/12/2021 On Wednesday, February 10, Governor Pritzker announced that Illinois would expand phase 1b vaccine eligibility on February 25 to include people with health conditions that put them at higher risk of severe illness from COVID-19 and people with disabilities. On Thursday,

COVID and Down Syndrome Webinar

Author: Dr. Brian Chicoine and Dr. Andre Strydom - Matthew Foundation Webinar

On January 8, 2021, Drs. Brian Chicoine and Andre Strydom presented a webinar hosted by the Matthew Foundation in collaboration with the Stanford Down Syndrome Research Center. They provided an update on the Trisomy 21 Research Society COVID and Down Syndrome Survey and discussed the DSMIG-USA Vacci

COVID-19 Vaccine Information

Author: Adult Down Syndrome Center - Resource List

On December 11, 2020, the U.S. Food and Drug Administration issued an emergency use authorization (EUA) that allows the Pfizer-BioNTech COVID-19 vaccine to be distributed in the United States. Information about the vaccine and its distribution continues to be released. We have provided links to reso

DSMIG-USA IDD COVID-19 Vaccination Position Statement

Author: Down Syndrome Medical Interest Group - USA - DSMIG-USA

On December 16, 2020, the Down Syndrome Medical Interest Group - USA issued a position statement on the COVID-19 vaccine. The position statement was updated on January 5, 2021.    DSMIG-USA recommends the COVID-19 vaccine for individuals with Down syndrome or other intellectual dis

Routines during the Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When the COVID-19 pandemic started, my first thoughts of concern for our patients and all people with Down syndrome were around the virus and the potential of becoming severely ill with COVID-19. We have learned much since then about those at higher risk of severe cases of COVID-19, and we continue

Tips for Running Virtual Social Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Since April, staff at the Adult Down Syndrome Center have been hosting online socials and social skills groups via Zoom. Our goal is to encourage social participation and engagement while we maintain physical distance due to COVID-19. People throughout the country have contacted us with interest in

An International Survey on the Impact of COVID-19 in Individuals with Down Syndrome

Author: Huls et al. - medRxiv (2020)

Abstract Background:  Health conditions and immune dysfunction associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19 once infected by SARS-CoV-2. Methods:  The T21RS COVID-19 Initiative launched an international survey for clinicians or caregiver

Celebrating Holidays During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource

We have received several questions about how to celebrate holidays safely during the COVID-19 pandemic. Like many of our answers, there isn't a one-size-fits-all solution. Many factors need to be considered when deciding how and with whom to celebrate. While the holidays will certainly look

T21RS COVID-19 and Down Syndrome Survey

Author: Trisomy 21 Research Society - COVID-19 Taskforce

Throughout the COVID-19 pandemic, the Trisomy 21 Research Society (T21RS) has conducted an international survey of COVID-19 in Down syndrome. Caregivers and clinicians of individuals with Down syndrome who developed COVID-19 are invited to complete the survey. The T21RS has shared the findings from

COVID-19 Mortality Risk in Down Syndrome: Results from a Cohort Study of 8 Million Adults

Author: Clift et al. - Annals of Internal Medicine (2020)

The article linked below describes the findings of a study that evaluated Down syndrome as a risk factor for death from COVID-19 through an analysis of individual-level data in a cohort study of 8.26 million adults. It was published at annals.org on October 21, 2020. Full-text (no cost):  h

Clinical Characteristics of Individuals with Down Syndrome Deceased with COVID-19 in Italy - A Case Series

Author: Villani et al. - American Journal of Medical Genetics Part A (2020)

Abstract Background:  Persons with Down syndrome (DS) are presumed to be at high risk of severe CoVID-19 due to immune dysregulation and often compromised cardiopulmonary function. Aim of the present study is to assess epidemiological and clinical characteristics of individuals with DS dece

Tips for Being in Public During COVID-19

Author: Adult Down Syndrome Center

This handout shares reminders of things we should do to stay safe and healthy during the COVID-19 pandemic.

Dental Care During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource

The information below was shared on August 25, 2020. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link   and/or the Mouth Healthy website of the American Dental Association at this link . Dental disease, especial

Q&A on COVID-19 and Down Syndrome

Author: National Consortium - DSMIG-USA, Global, LuMind-IDSC, NDSC, NDSS, NTG

On March 26, 2020, a Q&A on COVID-19 and Down syndrome was completed by a consortium of national Down syndrome organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA), Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congr

Types of COVID-19 Testing

Author: Adult Down Syndrome Center - Link

COVID-19 testing is a common topic of discussion these days. There are two types of testing - viral and antibody. Viral testing indicates if someone is currently infected with COVID-19. This test is usually done with a nose swab. Antibody testing indicates if a person was infected with COVID-19 in t

Returning to School or Work in Fall 2020 [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The information below was shared on July 23, 2020. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at  this link . Many individuals with Down syndrome and their families have asked us questions about going back to school an

How to Wash Your Hands Visual

Author: Adult Down Syndrome Center

This visual handout corresponds to our video on how to wash your hands. It shows the steps for handwashing.

How to Wash Your Hands Video

Author: Adult Down Syndrome Center - Video

In this video below, Jeff demonstrates how we should wash our hands. As Jeff explains, handwashing is an important thing we can do to keep ourselves healthy! A corresponding visual handout can be found at this link .

COVID-19 Testing Sites

Author: Adult Down Syndrome Center - Resource List

*Please note: This article discusses viral testing used to diagnose if an individual currently has COVID-19. This article does not discuss antibody testing used to determine if an individual was exposed to COVID-19 previously and developed some level of immunity to COVID-19 .  We have recei

Going to Public Places During the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Many states and communities have lifted stay-at-home restrictions. We have received questions about whether it is safe to resume certain activities such as going to restaurants, getting haircuts, traveling, and more. Unfortunately, there is no "one-size-fits-all" answer. It depends

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