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For people with Down syndrome, family members, caregivers and professionals.

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COVID-19 Booster Shots and Third Doses

Author: Adult Down Syndrome Center - Resource

UPDATED 10/21/2021 : The CDC shared booster shot recommendations for the Moderna and Johnson & Johnson COVID-19 vaccines. The statement can be found at this link . 10/15/2021 : According to the CDC , you can get a flu vaccine at the same time you get a COVID-19 vaccine, including a COVID-19

Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

UPDATED 10/21/2021 : The CDC shared booster shot recommendations for the Moderna and Johnson & Johnson COVID-19 vaccines. The statement can be found at this link .  9/28/2021 On September 24, 2021, the Centers for Disease Control and Prevention (CDC) updated the recommendations for

Risk Prediction of COVID-19 Related Death and Hospital Admission in Adults after COVID-19 Vaccination

Author: Hippisley-Cox et al. - The BMJ (2021)

Abstract: Objectives:  To derive and validate risk prediction algorithms to estimate the risk of COVID-19 related mortality and hospital admission in UK adults after one or two doses of COVID-19 vaccination. Design:  Prospective, population based cohort study using the QResearch da

COVID-19 & Down Syndrome Resource

Author: National Consortium - DSMIG-USA, Global, LuMind IDSC, NDSC, NDSS, NTG

On March 1, 2021, a new resource on COVID-19 and Down syndrome was completed by a national consortium of organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA), Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congress (NDSC), Na

Possible Causes of Regression in People with Down Syndrome during the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight. The man had gotten a COVID-19 vaccine about one month before his symptoms started. His family wonder

DSMIG Response to CDC Mask Recommendations

Author: Down Syndrome Medical Interest Group - USA - DSMIG-USA

In May 2021, the Down Syndrome Medical Interest Group shared a position statement titled "Response to Centers for Disease Control Mask Recommendations." This document shares information that people with Down syndrome and their families may want to consider in ligh

DSMIG-USA IDD COVID-19 Vaccination Position Statement

Author: Down Syndrome Medical Interest Group - USA - DSMIG-USA

On December 16, 2020, the Down Syndrome Medical Interest Group - USA issued a position statement on the COVID-19 vaccine. The position statement was updated on January 5, 2021 and again on May 28, 2021.     DSMIG-USA recommends the COVID-19 vaccine for individuals with Dow

Immune Response to COVID-19 Vaccines

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about whether the immune systems of people with Down syndrome produce antibodies in response to COVID-19 vaccines. I have shared the response I sent below.  The immune system's response to any vaccine is key to preventing infections. However, some people with

Post COVID-19 Life: What Does This Look Like and How Do We Prepare?

Author: Nicole Baumer, MD, MEd, Katie Frank, PhD, OTR/L, Lina Patel, PsyD - National Down Syndrome Society Presentation

What does post COVID-19 life look like and how do we prepare? These questions were discussed in a presentation hosted by the National Down Syndrome Society during their virtual Adult Summit in April 2021. The presenters were three members of the Down Syndrome Medical Interest Group - USA (DSMIG-USA)

Travel after COVID-19 Vaccination

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The information below was shared on April 12, 2021. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link .  My family and I have been vaccinated. Is it safe to travel?  We have started to get questions simi

Tips for Being a Successful Employee

Author: Adult Down Syndrome Center

This handout shares tips for individuals with Down syndrome to be successful in the workplace.

Medical Vulnerability of Individuals with Down Syndrome to Severe COVID-19 - Data from the Trisomy 21 Research Society and the UK ISARIC4C Survey

Author: Huls et al. - EClinicalMedicine (2021)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19.  Methods:  The T21RS COVID-19 Initiative launched an international survey for clinicians or caregiver

An International Survey on the Impact of COVID-19 in Individuals with Down Syndrome

Author: Huls et al. - EClinicalMedicine (2020)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19. Methods:  The T21RS COVID-19 Initiative launched an international survey for clinicians or caregivers 

Taking Medication for Side Effects from the COVID-19 Vaccine

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As with all vaccines, there is the potential to experience side effects after getting the COVID-19 vaccine. This is true for people with and without Down syndrome. These side effects may include pain or swelling on the arm where you got the vaccine, fever, chills, tiredness, and/or headache. These s

Visuals and Videos About COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Basic COVID-19 Information By and For People with Disabilities  (Green Mountain Self-Advocates) Coronavirus: What Is It and What Ca

Visuals and Videos About Wearing Masks During COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about wearing masks during COVID-19. We have provided links to some of them below.  VISUALS / STORIES / PLAIN LANGUAGE RESOURCES Wearing a Mask Social Story  (Autism Services, Education, Resources, and Training Collaborative)&

Visuals and Videos About the COVID-19 Vaccine

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine  (Autism and Intellectual Disabilities in Pennsylvania) After Getting the COVID-19 Vaccine &a

When can I get a COVID-19 vaccine?

Author: Adult Down Syndrome Center - COVID-19

Updated:  4/15/2021 Advocate Aurora Health is now vaccinating anyone in Illinois and Wisconsin who is 16 and older - whether you are a patient or not - with the Moderna and Pfizer vaccines. You can schedule in LiveWell, online, or by calling 866-443-2584. Please see this link for more infor

COVID and Down Syndrome Webinar

Author: Dr. Brian Chicoine and Dr. Andre Strydom - Matthew Foundation Webinar

On January 8, 2021, Drs. Brian Chicoine and Andre Strydom presented a webinar hosted by the Matthew Foundation in collaboration with the Stanford Down Syndrome Research Center. They provided an update on the Trisomy 21 Research Society COVID and Down Syndrome Survey and discussed the DSMIG-USA Vacci

COVID-19 Vaccine Information

Author: Adult Down Syndrome Center - Resource List

General Vaccine Information Centers for Disease Control and Prevention (CDC) Pfizer-BioNTech COVID-19 Vaccine   Moderna COVID-19 Vaccine Janssen (Johnson & Johnson) COVID-19 Vaccine National Association of Councils on Developmental Disabilities (NACDD) Get Out the Vaccine  

Routines during the Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When the COVID-19 pandemic started, my first thoughts of concern for our patients and all people with Down syndrome were around the virus and the potential of becoming severely ill with COVID-19. We have learned much since then about those at higher risk of severe cases of COVID-19, and we continue

Tips for Running Virtual Social Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Since April, staff at the Adult Down Syndrome Center have been hosting online socials and social skills groups via Zoom. Our goal is to encourage social participation and engagement while we maintain physical distance due to COVID-19. People throughout the country have contacted us with interest in

Celebrating Holidays During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource

We have received several questions about how to celebrate holidays safely during the COVID-19 pandemic. Like many of our answers, there isn't a one-size-fits-all solution. Many factors need to be considered when deciding how and with whom to celebrate. While the holidays will certainly look

T21RS COVID-19 and Down Syndrome Survey

Author: Trisomy 21 Research Society - COVID-19 Taskforce

Throughout the COVID-19 pandemic, the Trisomy 21 Research Society (T21RS) has conducted an international survey of COVID-19 in Down syndrome. Caregivers and clinicians of individuals with Down syndrome who developed COVID-19 are invited to complete the survey. The T21RS has shared the findings from

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