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For people with Down syndrome, family members, caregivers and professionals.

Aging and Down Syndrome: A Health & Well-Being Guidebook

August 2023 | National Down Syndrome Society - Resource

The resource linked below is a guidebook from the National Down Syndrome Society. According to the Introduction, "Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can set the stage for successful aging. The purpose of this booklet is to help with this process." NDSS requires users to provide their name, email address, city, and state to download the resource.

Aging and Down Syndrome Guidebook opens in new window




Table of Contents


Concepts of Aging with Down Syndrome

Setting the Stage for Success

Healthy Lifestyle Habits to Consider

Assembling Your Team

Coordination of Care

Common Medical Conditions


Alzheimer's Disease

Planning for Successful Aging



Additional resources are available in the Aging section of our online library. 

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.