The resource linked below is a guidebook from the National Down Syndrome Society. According to the Introduction, "Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can set the stage for successful aging. The purpose of this booklet is to help with this process." NDSS requires users to provide their name, email address, city, and state to download the resource.
Aging and Down Syndrome Guidebook

Table of Contents
Introduction
General Overview of Aging with Down Syndrome
Common Medical Conditions
Emotional and Psychiatric Well-Being
An Introduction to Alzheimer's Disease
The Span of Alzheimer's Disease
Recognizing Alzheimer's Disease
A Caregiver's Guide to Alzheimer's Disease
Planning for Old Age
Living Environments and Housing
Thinking About Retirement
Coordination of Care
End-of-Life Considerations