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For people with Down syndrome, family members, caregivers and professionals.

Aging and Down Syndrome: A Health & Well-Being Guidebook

November 2017 | National Down Syndrome Society - Resource

The resource linked below is a guidebook from the National Down Syndrome Society. According to the Introduction, "Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can set the stage for successful aging. The purpose of this booklet is to help with this process." NDSS requires users to provide their name, email address, city, and state to download the resource.

Aging and Down Syndrome Guidebook




Table of Contents


General Overview of Aging with Down Syndrome

Common Medical Conditions

Emotional and Psychiatric Well-Being

An Introduction to Alzheimer's Disease

The Span of Alzheimer's Disease

Recognizing Alzheimer's Disease

A Caregiver's Guide to Alzheimer's Disease

Planning for Old Age

Living Environments and Housing

Thinking About Retirement

Coordination of Care

End-of-Life Considerations

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We offer a variety of resources for people with Down syndrome, their families and caregivers and the professionals who care for and work with them. Search our collection of articles, webinars, videos, and other educational materials.

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.