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Resources

For people with Down syndrome, family members, caregivers and professionals.

Health Care Transition Resources

November 2019 | Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

The resources below can be used by individuals with Down syndrome, their families and caregivers, and their health care providers during the transition from pediatric to adult health care. 

Got Transition
Center for Health Care Transition Improvement
This site contains a wide variety of health care transition resources for health care providers, families and caregivers, and individuals with intellectual and developmental disabilities. 
 
Internal Medicine Guide for Intellectual and Developmental Disabilities
American College of Physicians
This guide contains transition readiness and self-care assessments as well as tools for creating medical summaries/transfer records.
 
 
Transition Toolkit (Illinois)
University of Illinois at Chicago's Division of Specialized Care for Children
This toolkit has assessments, tips, and other tools for a variety of areas including health care, guardianship and alternatives to guardianship, post-secondary education, employment, and more.
 
 
Trisomy 21 Toolkit
Children's Hospital of Philadelphia Trisomy 21 Program
This toolkit has a series of worksheets that can support individuals with Down syndrome and their families as they plan and implement the transition to adult medical care. 
 
Additional resources can be found in the Transitions topic on our website.

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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