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For people with Down syndrome, family members, caregivers and professionals.

Regression in People with Down Syndrome: Current Consensus Update for Families

September 2023 | Down Syndrome Medical Interest Group - USA - Current Consensus Update for Families

Regression in Persons with Down Syndrome: Current Consensus Update for Families opens in new window

The Down Syndrome Medical Interest Group - USA (DSMIG-USA) developed a consensus update for families on Down syndrome regression disorder (DSRD, also called Down syndrome disintegrative disorder, unexplained regression in Down syndrome, and others). The document describes DSRD, lists associated symptoms, and discusses diagnosis and treatment. 

Additional information is available on the DSMIG-USA Resources page opens in new window and in the Decline in Skills and Regression section of our Resource Library.


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We offer a variety of resources for people with Down syndrome, their families and caregivers and the professionals who care for and work with them. Search our collection of articles, webinars, videos, and other educational materials.

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.