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For people with Down syndrome, family members, caregivers and professionals.
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What is menopause? Menopause is the point in a woman’s life when she no longer has menstrual cycles. It typically occurs when a woman is in her late 40s to 50s and is diagnosed afte
We received a question from a family member of an individual with Down syndrome who is anxious and fearful of bad weather, particularly thunderstorms. Thunder, lightning, strong winds, heavy rain, hai
Many women with Down syndrome experience symptoms associated with their period. When those symptoms are consistent or more severe, women are sometimes diagnosed with premenstrual syndrome (PMS) or pre
Premenstrual syndrome (PMS) and premenstrual dysphoric disorder (PMDD) are psychological and physical symptoms which are related to hormone changes that occur during a woman's menstrual cycle.
A common and appropriate question is: Can a person be weaned off a psychotropic medication? A psychotropic medication is a medication prescribed to treat a psychological problem such as depression or
Birth control encompasses a wide range of strategies and medications used to prevent pregnancy. Besides preventing pregnancy, some of the medications may be used to treat other common symptoms of mens
Story About Getting My Period Story About How to Change My Pad Story About How to Change My Tampon Story About How to Change My Period Panties Story About W
Abstract Findings from a recent study of the largest documented cohort of individuals with Down syndrome (DS) in the United States described prevalence of common disease conditions and strongly sugges
One topic that comes up frequently at the Adult Down Syndrome Center is menstrual hygiene. Women with Down syndrome and their caregivers often ask us about strategies to make periods easier or even to
Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful bumps under the skin. The handout linked below was developed by the Society for Pediatric Dermatology . Informa
We were sent a question about selective mutism and loss of speech. Selective mutism is defined as an anxiety condition in which a person with normal verbal skills is unable to speak in particular sett
The video below is a recording of a webinar called "Promoting Mental Health in Adolescents & Adults with Down Syndrome" presented by Brian Chicoine, MD on September 28, 2021.
Nearly all of us have experienced anxiety during our lives. We may feel anxious about a school exam, a new job, a dentist appointment, a disagreement with a friend, or other similar situations. This i
Abstract Down syndrome (DS) is the most common chromosomal condition and affects many organs including the skin. Dermatologists are an integral part of the DS care team. This is a review of both commo
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.
Hair loss can occur for many reasons. Some of these may include: Age is a common cause not only for men but for women, too. Alopecia is an autoimmune condition (condition in which the body&a
The social stories linked below are intended to help individuals with Down syndrome and other developmental or intellectual disabilities prepare for and feel more comfortable with getting a pelvic exa
Depression is a mental health condition that is characterized by persistent feelings of sadness and/or a decreased interest in things that an individual previously enjoyed. Depression is more common i
We discuss "I" statements in our social skills groups for individuals with Down syndrome. "I" statements are a way to share how we feel in a clear, calm, and respec
The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl
How can I find a therapist, psychiatrist, or other mental health provider with experience working with individuals with Down syndrome? Here are a few suggestions. Contact a Down syndrome cli
The PDF linked below is a copy of the second edition of Dr. McGuire and Dr. Chicoine's book originally published by Woodbine House Publishing in 2021. After Woodbine closed in 2022, the publis
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on March 28, 2021 as part of the Massachusetts Down Syndrome Congress 37th Annual Virtual Confer
Bathing and showering may be difficult for some individuals with Down syndrome for many reasons. Below are a variety of adaptive strategies and equipment to promote safety and independence with this s
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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