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For people with Down syndrome, family members, caregivers and professionals.

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Addressing Challenges with Falling or Staying Asleep

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

We frequently receive questions about sleep. Individuals with Down syndrome and/or their families report that they have difficulty falling asleep or staying asleep. In this article, we will share stra

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An Introduction to Zoom

Author: Adult Down Syndrome Center

These slides provide information about why and how to use Zoom.

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Sleep in Adolescents and Adults with Down Syndrome Webinar (8/4/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Webinar

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on August 4, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrom

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Down Syndrome Disintegrative Disorder: A Clinical Regression Syndrome of Increasing Importance

Author: Rosso et al. - Pediatrics (2020)

Abstract Down syndrome disintegrative disorder (DSDD), a developmental regression in children with Down syndrome (DS), is a clinical entity that is characterized by a loss of previously acquired adapt

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Behavior Changes in Adolescents and Adults with Down Syndrome Webinar Recording (4/28/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Webinar

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on April 28, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrom

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My Rules for Conversation

Author: Adult Down Syndrome Center

This handout describes guidelines to follow when having conversations with others.

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Refusal to Eat Solid Foods

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a person with Down syndrome who was refusing to eat solids. He was found to have dental disease. He needed several fillings and had a couple baby teeth removed. The dentis

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Qualities of an Adult

Author: Adult Down Syndrome Center

"Adulting" can be hard! This handout shows qualities of adults and explains how we should act to be treated like adults.

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Unexplained Regression in Down Syndrome: 35 Cases from an International Down Syndrome Database

Author: Santoro et al. - Genetics in Medicine (2019)

Abstract Purpose:  An entity of regression in Down syndrome (DS) exists that affects adolescents and young adults and differs from autism spectrum disorder and Alzheimer disease.  Me

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One-Way and Two-Way Friendships

Author: Adult Down Syndrome Center

This visual compares one-way (nonreciprocal) and two-way (reciprocal) friendships. This idea can also be applied to crushes and/or romantic relationships.

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Plan for When I'm Angry

Author: Adult Down Syndrome Center

This handout can be used to make a plan for what to do when you get angry.

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Strategies to Control My Anger

Author: Adult Down Syndrome Center

This handout gives examples of things you can do when you get angry.

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Body Changes When Happy

Author: Adult Down Syndrome Center

This handout describes things that our bodies may feel or do when we are happy.

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Body Changes When Anxious, Angry, or Stressed

Author: Adult Down Syndrome Center

This handout describes things that our bodies may feel or do when we are anxious, angry, or stressed.

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The Feelings Volcano

Author: Adult Down Syndrome Center

This visual uses a volcano to describe how our emotions can escalate.

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Catatonia in Down Syndrome: Systematic Approach to Diagnosis, Treatment and Outcome Assessment Based on a Case Series of Seven Patients

Author: Miles et al. - Neuropsychiatric Disease and Treatment (2019)

Abstract Objective:  The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-

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Ways to Get Good Sleep

Author: Adult Down Syndrome Center

This visual shares things you can do to promote good sleep habits.

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Lower Body Joint Compression

Author: Katie Frank, PhD, OTR/L

This article describes a form of proprioceptive input called lower body joint compression which may be helpful for individuals with sensory challenges.

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Personal Space

Author: Adult Down Syndrome Center

This handout discusses and gives examples of an appropriate amount of personal space.

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Going to Get My Sleep Mask

Author: Children's Hospital of Wisconsin

This is a visual explanation of the process of getting a sleep mask.

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Good Ways to Touch People at School

Author: Adult Down Syndrome Center

This handout describes and shows appropriate ways to touch people at school.

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Making Good Choices- Female

Author: Adult Down Syndrome Center

This is a visual support about making good choices for women.

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Making Good Choices- Male

Author: Adult Down Syndrome Center

This is a visual support about making good choices for men.

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Going for a Sleep Study

Author: Children's Hospital of Wisconsin

This is a visual explanation of the process of getting a sleep study done.

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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