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For people with Down syndrome, family members, caregivers and professionals.

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Down Syndrome Clinic Lists

Author: GLOBAL, NDSC, NDSS - Resource

Several national Down syndrome organizations maintain lists of Down syndrome clinics in the United States. If there is a clinic near you but adults are not seen by its providers, the clinic may be abl

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Getting Ear Wax Removed

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting Ear Wax Removed Visual    explains what happens when we get our ears cleaned out. This visual can help individuals with Down syndrome know what to expect when g

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Getting an Ultrasound Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting an Ultrasound Visual    explains what happens when we get an ultrasound. This visual can help individuals with Down syndrome know what to expect when going for

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Visuals for Medical Appointments

Author: Adult Down Syndrome Center - Resource List

Visuals can help individuals with Down syndrome prepare for and know what to expect at medical appointments. Our Resource Library has several examples.    Visits to the Doctor &n

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Information Forms to Share with Hospitals and Clinics

Author: Adult Down Syndrome Center - Resources

Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfami

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Getting an X-Ray Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting an X-Ray visual  explains what happens when we get an x-ray. This visual can help individuals with Down syndrome know what to expect when going for an x-ray.  A

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Getting an EEG Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting an EEG visual  explains what happens when we have an electroencephalogram (EEG) done. It can help individuals with Down syndrome know what to expect when going for an EEG. Additi

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Getting My Blood Drawn Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting My Blood Drawn visual  explains what happens when we have a blood test done.    This visual can help individuals with Down syndrome know what to expect when goi

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Financial Impact of a Specialized Down Syndrome Clinic: Implications and Support for Institutional Support of Specialty Care Clinics

Author: VanZant & Vellody - American Journal of Medical Genetics, Part A

Abstract Individuals with Down syndrome (DS) have specific health care needs and require additional screening and surveillance for commonly associated conditions. The American Academy of Pediatrics (A

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Anesthesia

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

There are four main factors to consider in a discussion of anesthesia in people with Down syndrome (DS): Anesthesia can be an important part of good health care at times. Many people

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Visits to a Doctor's Office

Author: Adult Down Syndrome Center

This visual support explains what to expect when you go to a doctor's appointment.

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Taking Charge of My Appointment

Author: Adult Down Syndrome Center

Individuals with Down syndrome can use this handout before, during, and after health appointments to help them advocate for their health.

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Tips for Successful Blood Draws

Author: Katie Frank, PhD, OTR/L - Occupational therapist, Adult Down Syndrome Center

Do you or does a family member or friend with Down syndrome dread getting blood drawn? Here are some tips to help with blood draws:  Make sure to be hydrated! This will help the phle

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ADSC Patient Questionnaires

Author: Adult Down Syndrome Center - Forms

New and returning patients to the Adult Down Syndrome Center are asked to fill out a health questionnaire to share important information with their health care provider and help guide their appointmen

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Specialty Clinics for Adults with Down Syndrome: A Clinic Survey

Author: Santoro et al. - American Journal of Medical Genetics: Part A (2021)

Abstract Specialty centers improve care for patients with Down syndrome. The cohort of adults with Down syndrome is increasing, but the capacity for specialty centers to meet their medical care needs

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My Health Passport

Author: Florida Center for Inclusive Communities

This health passport can be filled out by individuals with Down syndrome and their families to share information with health care professionals about how they can best support the individual.

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A Center for Adults and Adolescents with Down Syndrome

Author: Chicoine, McGuire, Dominiak, Bilodeau, & Chicoine

An article written to celebrate the 20th anniversary of the opening of the Adult Down Syndrome Center of Advocate Lutheran General Hospital and Advocate Medical Group

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Development of a Clinic for Adults With Down Syndrome

Author: Chicoine, McGuire, Hebein, Gilly

This is an article published in the journal Mental Retardation in 1994.

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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