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For people with Down syndrome, family members, caregivers and professionals.
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In this handout, our occupational therapist provides recommendations for affordable sensory equipment .
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on November 10, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Synd
Agitated or challenging behavior can be a symptom that people with Down syndrome (DS) who have Alzheimer’s disease (AD) can have. When it occurs, careful assessment is important. An evaluati
The guidebook linked below was published by the National Down Syndrome Society "to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer
Title: Alzheimer's Disease Prevention and Healthy Aging in People with Down Syndrome Date: May 18, 2022 Presenter: Brian Chicoine, MD Host Organization:  
In September 2017, we started filming a video journal with Colleen, a woman with Down syndrome and Alzheimer's disease, and Bo, Colleen's sister and caregiver. Colleen was diagnosed wi
An orientation book can be used for people with Alzheimer’s disease or dementia to help them remember things about their daily life.
Alzheimer’s disease is a progressive neurological condition. It is a type of dementia (more information about dementia is available on the National Institute on Aging website &n
The resource linked below is a free to download booklet and set of postcards aimed at supporting conversations about dementia with people who have an intellectual disability. Access the Booklet &n
This two-page resource provides ideas for staying connected to someone who is experiencing memory loss.
This booklet about dementia for families and carers was developed by Down's Syndrome Scotland. It was designed to help in the care and support of a person with Down syndrome and dementia. &
Alzheimer’s disease is a form of cognitive impairment and decline in skills that is more common in people with Down syndrome. It is one, but not the only, type of cognitive impairment. In fa
This article describes a form of proprioceptive input called lower body joint compression which may be helpful for individuals with sensory challenges.
The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) developed a screening tool called the NTG - Early Detection Screen for Dementia (NTG-EDSD). The NTG-EDSD&
Many individuals with Down syndrome (DS) experience difficulty with their proprioceptive system. The proprioceptive sensors in our body are responsible for providing feedback so we know where our body
Key Points Alzheimer's disease is more common in people with Down syndrome. Presently, we do not know how to prevent or cure Alzheimer's disease. We may lower the risk of developing Al
We were sent a question about seizures in a person with Down syndrome who developed Alzheimer’s disease. The individual continued to experience seizures despite being treated with l
The Sensory System No one has a perfectly functioning sensory system. We all have sensory preferences and even sensory needs, each unique to how our central nervous system perceives and processes sens
The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L of the Adult Down Syndrome Center. Dr. Frank is an occupational therapist at the Center. In the webinar, she describes
Alzheimer’s disease not only impacts the individual with the disease but also the individual’s family, friends, and caregivers. Several organizations provide in-person, online, and
While many find a trip to the salon or barbershop relaxing and look forward to their new look, getting a haircut can be an uncomfortable and even frightening experience for those with sensory
This article describes a form of proprioceptive input called upper body joint compression which may be helpful for individuals with sensory challenges.
The use of weighted blankets is a sensory technique that provides deep pressure stimulation. Evidence suggests that deep pressure stimulation produces a calming effect to the autonomic nervous system
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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