Section Heading Background Image


For people with Down syndrome, family members, caregivers and professionals.

Support Groups for Caregivers of Individuals with Down Syndrome and Alzheimer's Disease

December 2023 | Various Organizations - Resource List

Alzheimer’s disease not only impacts the individual with the disease but also the individual’s family, friends, and caregivers. Several organizations provide in-person, online, and Facebook support groups for caregivers of individuals with Down syndrome and Alzheimer's disease.
A private Facebook group moderated by the Down Syndrome Association of Wisconsin. Must submit a request and answer a few questions to join the group.
Another private Facebook group for families of individuals with Down syndrome who have Alzheimer's disease. Must submit a request and answer a few questions to join the group. 
A private support group moderated by the LuMind IDSC Foundation. Must submit a request and answer a few questions to join the group.
The Workgroup provides several resources including a virtual support group and Facebook group. 
Local Down Syndrome Organizations
The Global Down Syndrome Foundation opens in new window and National Down Syndrome Congress opens in new window maintain lists of Down syndrome organizations by state. Local groups may offer support groups or be able to connect families to local resources.
The Alzheimer's Association has local chapters throughout the United States that can connect families to in-person and virtual support groups as well as other available resources. They also have a 24/7 hotline: 800-272-3900.
More resources can be found in the Alzheimer's disease section of our library. 

Find More Resources

We offer a variety of resources for people with Down syndrome, their families and caregivers and the professionals who care for and work with them. Search our collection of articles, webinars, videos, and other educational materials.

View Resource Library


Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.