Alzheimer’s disease not only impacts the individual with the disease but also the individual’s family, friends, and caregivers. Several organizations provide in-person, online, and Facebook support groups for caregivers of individuals with Down syndrome and Alzheimer's disease.
A private Facebook group moderated by the Down Syndrome Association of Wisconsin. Must submit a request and answer a few questions to join the group.
Another private Facebook group for families of individuals with Down syndrome who have Alzheimer's disease. Must submit a request and answer a few questions to join the group.
A private support group moderated by the LuMind IDSC Foundation. Must submit a request and answer a few questions to join the group.
The Workgroup provides several resources including a virtual support group and Facebook group.
Local Down Syndrome Organizations
The Alzheimer's Association has local chapters throughout the United States that can connect families to in-person and virtual support groups as well as other available resources. They also have a 24/7 hotline: 800-272-3900.