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Resources

For people with Down syndrome, family members, caregivers and professionals.

Support Groups for Caregivers of Individuals with Down Syndrome and Alzheimer's Disease

September 2022 | Various Organizations - Resource List

Alzheimer’s disease not only impacts the individual with the disease but also the individual’s family, friends, and caregivers. Several organizations provide in-person, online, and Facebook support groups for caregivers of individuals with Down syndrome and Alzheimer's disease.
 
 
Down Syndrome and Alzheimer's Disease Support Group
A private Facebook group moderated by the Down Syndrome Association of Wisconsin. Must submit a request and answer a few questions to join the group.
 
 
LuMind IDSC Down Syndrome and Alzheimer's Disease (DS-AD)
A private support group moderated by the LuMind IDSC Foundation. Must submit a request and answer a few questions to join the group.
 
 
Family Support Workgroup of the National Task Group on Intellectual Disabilities and Dementia Practices
The Workgroup provides several resources including a virtual support group and Facebook group. 
 
 
Local Down Syndrome Organizations
The Global Down Syndrome Foundation The preceding link opens in a new tab or window. and National Down Syndrome Congress The preceding link opens in a new tab or window. maintain lists of Down syndrome organizations by state. Local groups may offer support groups or be able to connect families to local resources.
 
 
Alzheimer's Association
The Alzheimer's Association has local chapters throughout the United States that can connect families to in-person and virtual support groups as well as other available resources. They also have a 24/7 hotline: 800-272-3900.
 
 
More resources on Down syndrome and Alzheimer's disease can be found at this link.
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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