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Resources

For people with Down syndrome, family members, caregivers and professionals.

Respite Organizations and Providers

July 2021 | Ann Garcia - Patient Advocate, Adult Down Syndrome Center

The list below includes information about respite organizations and providers in the greater Chicagoland area and/or Illinois. The types of respite provided are also included and color-coded: In-Home RespiteResidential RespiteGroup RespiteVoucher Respite. An overview of respite care and a description of the different types of respite can be found in the resource at this link.
 
New in 2022: In partnership with the Illinois Respite Coalition (IRC), the Division of Developmental Disabilities in the Illinois Department of Human Services was awarded a five-year $1.3 million Lifespan Respite Care Enhancement Grant from the Administration on Community Living (ACL). New services that were created as a result includes: 
 
  • Statewide respite toll-free line to provide information and referrals for respite: 866-ILL-RESP (866-455-7377). 

  • Emergency voucher stipends (up to $500) for caregivers in a crisis situation receiving no other state or waiver funding. 

  • Virtual respite training program for respite providers. 

 
If you are looking for resources for a different state/region, we recommend reaching out to a local Down syndrome parent organization or reviewing the resources provided on the ARCH National Respite Network and Resource Center website (www.archrespite.org).
 
 
ILLINOIS RESPITE ORGANIZATIONS & PROVIDERS
 
Abilities Plus - Kewanee, IL
Director of Community Support
309-852-4626
  • In-Home Respite
  • Henry, Stark, and Western Bureau Counties
Alden Network - Chicago and Bloomingdale, IL
Chicago: 773-338-0200
Bloomingdale: 630-529-3350
  • Residential Respite
The ARC of Iroquois County - Watseka, IL
815-432-5288
  • In-Home Respite
  • For residents of Iroquois County
The ARC of the Quad Cities Area - Rock Island, IL
309-786-6474
  • In-Home Respite
Association House - Chicago, IL
773-772-8009 ext. 110
  • In-Home Respite
  • Cook County
  • English and Spanish
  • Respite care by referral only. Family provides the worker. 
CCAR Industries - Charleston, IL
217-348-0127
  • In-Home Respite
  • Coles, Cumberland, and Douglas Counties
Clearbrook Arlington Heights, IL
Respite Coordinator
mbosco@clearbrook.org
Direct: 847-385-5335
  • In-Home Respite
  • Residential Respite
  • Group Respite
  • Voucher Respite
  • Boone, Cook, Dekalb, DuPage, Grundy, JoDavis, Kane, Kankakee, Kendall, Lake, Lee, McHenry, Ogle, Stephenson, Will, and Winnebago Counties
Coleman Tri-County Services, Inc. Harrisburg, IL 
618-252-0275
spayne@colemantricounty.org
  • In-Home Respite
  • Residential Respite
  • Group Respite
  • Gallatin, Saline, and White Counties.
Community Service Options, Inc. Chicago, IL 
773-471-4740
  • Voucher Respite
  • For residents of the City of Chicago who do not receive any I/DD funded services. 
Community Support Services - Brookfield, IL
respite@CSSservices.org
708-354-4547
  • In-Home Respite
  • Group Respite
  • Voucher Respite
  • For residents of western Cook and eastern DuPage counties. 
Community Support Systems - Teutopolis, IL
217-705-4300
  • In-Home Respite
  • For residents of Clay, Crawford, Cumberland, Edwards, Effingham, Fayette, Jasper, Lawrence, Richland, Wabash, and Wayne counties.
  • Families provide respite workers (must pass background checks).
CTF Illinois Orland Park, IL
708-429-1260
  • Group Respite
  • Programs in Charleston, Frankfort, Olney, Orland Park, Palos Park, and Tinley Park
Easter Seals Chicago/Rockford Chicago and Rockford, IL
  • Respite for caregivers of children through age 21.
  • For residents of Winnebago, Boone, or Ogle Counties. 
Easter Seals Joliet Region - Joliet, IL 
815-725-2194
  • In-Home Respite
El Valor - Chicago, IL
312-666-4511
  • In-Home Respite
  • Cook County
  • Services for Hispanic families.
Envision Unlimited - Chicago, IL 
respiteinfo@envisionunlimited.org
Main: 312-346-6230
Respite: 773-899-6177
  • In-Home Respite
  • Group Respite
  • For residents of Adams, Brown, Champaign, Cook, DeWitt, Fulton, Knox, Livingston, Logan, Macon, Mason, McLean, Morgan, Moultrie, Peoria, Pike, Sangamon, Scott, and Tazewell Counties.
  • Priority given to families of individuals who are not receiving other services and who are on the PUNS waiting list. 
Family Service - Champaign, IL
217-352-0099
  • Family Caregiver Support Program for individuals caring for a family member or friend 60 or an adult child with disabilities. 
  • For residents of Champaign and Piatt Counties. 
Glenkirk - Northbrook, IL
respite@glenkirk.org
847-271-5111 ext. 613
  • In-Home Respite
  • Programs not for families with Home-Based waivers. 
  • For residents in specific areas in Lake and Northern Cook Counties. 
Good Shepherd Center - Hazel Crest, IL 
Main: 708-335-0020
In-Home Services Director: 708-985-3722
  • In-Home Respite
  • For residents of Beverly, Mt. Greenwood, and Morgan Park, and south suburban Cook and northern Will Counties. 
Horizon House of Illinois Valley - Peru, IL
815-223-4488
  • Voucher Respite
  • Bureau, LaSalle, Marshall, and Putnam Counties
Illinois Respite Coalition - Hazel Crest, IL
Office: 708-985-3742
Cell: 630-207-8479
ilrespitecoalition@gmail.com
  • In-Home Respite
  • Bond, Champaign, Clark, Clinton, Crawford, Cumberland, DeWitt, Edgar, Effingham, Jasper, Macon, Marion, Mason, Moultrie, Richland, and Washington Counties
Jewish Child and Family Services - Chicago, IL
Main: 855-275-5237
Respite: 773-765-3155
  • Group Respite
  • Group respite program once per month in Rogers Park. 
  • Families with Medicaid Home-Based waiver not eligible.
Kreider Services - Dixon, IL
815-288-6691
  • Voucher Respite
  • For residents of Carroll, JoDavis, Lee, Ogle, Stephenson, or Whiteside Counties who do not receive residential or other respite services.
Little City - Palatine, IL
847-358-3291
  • In-Home Respite
  • Cook, Lake, and McHenry Counties
Little Friends Warrenville, IL
630-204-0224
  • Group Respite
  • Weekly program for children ages 3-17 and their siblings.
Misericordia - Chicago, IL
773-273-4570
  • Residential Respite
  • Respite available at McAuley Residence only.
  • Private pay.
North Center - Chicago, IL
773-777-4111
  • In-Home Respite
  • North and Northwest Chicago, Cook County
Opportunity House, Inc. - Sycamore, IL
815-895-5108
  • In-Home Respite
  • DeKalb County
Piatt County Mental Health Center - Monticello, IL
adresback@pcmhc.org
217-762-5371
  • In-Home Respite
  • Piatt County
ResCare Community Living - Locations throughout IL
  • In-Home Respite
  • Respite care for individuals with intellectual disabilities through the Home and Community Based Services program.
Shelby County Community Services, Inc. - Shelbyville, IL
217-774-5587
  • In-Home Respite
  • Shelby County
Specialized Training for Adult Rehabilitation, Inc. (START) - Murphysboro, IL
618-687-2378
  • Group Respite
  • Jackson County
Trinity Services New Lenox, iL
In-Home: 815-485-8146, dknights@trinityservices.org
Residential: 815-485-6197, jschneider@trinityservices.org
  • In-Home Respite
  • Residential Respite
  • For residents of Clinton, Grundy, Madison, Monroe, Randolph, St. Clair, and Will Counties. 
UCP - Center for Disability Services - Joliet, IL
815-744-3500
  • In-Home Respite
  • Group Respite
  • Grundy, Iroquois, Kankakee, Kendall, and Will Counties
UCP Seguin - Cicero, IL
708-222-4815
  • In-Home Respite
  • Residential Respite
  • Offers in-home and weekend respite.
  • In-home respite primarily for residents of Oak Park or River Forest Townships. 
  • Weekend respite home primarily for residents of Proviso, Oak Park, and River Forest Townships.
William M. BeDell Achievement and Resource CenterWood River, IL
618-251-2175
  • In-Home Respite
  • Bond, Clinton, Fayette, Jersey, Madison, and St. Clair Counties

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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