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For people with Down syndrome, family members, caregivers and professionals.
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The resource linked below is a guidebook from the National Down Syndrome Society. According to the Introduction, "Adults with Down syndrome, along with their families and caregivers, need acc
Key Points Alopecia areata is a sudden loss of hair. It is an autoimmune condition in which the person's own immune system attacks the hair follicles. Alopecia areata is patchy hair
Alphabet Workout Create a workout by spelling your name, the day of the week, or another word or phrase of your choosing! A - 10 jumping jacks B - 15 crunches C - 5 squats D - 5 push-ups E - Wall sit
Families trying to decide what level of support would work best for their adult family member with Down syndrome may want to look at options besides guardianship . Individuals with Down syndrome and t
The guidebook linked below was published by the National Down Syndrome Society "to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer
Title: Alzheimer's Disease Prevention and Healthy Aging in People with Down Syndrome Date: May 18, 2022 Presenter: Brian Chicoine, MD Host Organization:
The stories linked below were developed to help individuals with Down syndrome understand what Alzheimer's disease is and how Alzheimer's disease may affect someone i
In September 2017, we started filming a video journal with Colleen, a woman with Down syndrome and Alzheimer's disease, and Bo, Colleen's sister and caregiver. Colleen was diagnosed wi
In January 2022, Suzanne Aaron, an information & outreach specialist from the Illinois Life Span Program of the Arc of Illinois, presented a webinar called "An Introduction t
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There are four main factors to consider in a discussion of anesthesia in people with Down syndrome (DS): Anesthesia can be an important part of good health care at times. Many people
What is measles? Measles is a highly contagious viral infection. Due to the availability and effectiveness of vaccines, many individuals have never experienced or even seen measles in the United State
While we may love to hug, we know that hugging is not appropriate in all settings. Families and caregivers of adolescents and adults with Down syndrome have expressed that it can be challenging to tea
Appropriate Touch Family Hug Hold hands Kiss Friends Side hug High five Wave Fist bump Shake hands Boyfriends and Girlfriends This type of touch is romantic. Hug Kiss Put their arms around each other
Abstract Objective: To develop standardization for nomenclature, diagnostic work up and diagnostic criteria for cases of neurocognitive regression in Down syndrome. Background: The
Abstract Importance: People with Down syndrome have a high risk of developing Alzheimer disease dementia. However, penetrance and age at onset are considered variable, and the association of
The video below is a recording of a webinar presented by Brian Chicoine, MD, on September 13, 2023. In this webinar, Dr. Chicoine describes common health conditions experienced by people with Down syn
Atlantoaxial instability (AAI) is subluxation or slippage of the first neck vertebrae in relation to the second. It is more common in people with Down syndrome (DS) and there are unique screening cons
It may be hard to believe when many of us are still shivering in our winter coats, but summer is just around the corner! Summer is not only a time to soak up sunshine and enjoy family vacations but a
*This article was adapted from Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges, 2nd Edition . What is attention-deficit/hyperactivi
The video below was narrated and presented by Joseph Pereira, a 4th year medical student at Harvard Medical School, as part of his work with the MGH Down Syndrome Program . He shares information about
The handouts linked below were developed to teach individuals with Down syndrome how to think more positively. If an individual has an automatic negative thought (or ANT), they can squish it or brush
Key Points Differences in the body's sensory systems in people with Down syndrome can contribute to impairments in balance. Impaired balance can limit the ability or willingness of people with
Bathing and showering may be difficult for some individuals with Down syndrome for many reasons. No desire to bathe Too many steps to remember Not washing thoroughly Just stands in the shower (doesn&a
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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