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For people with Down syndrome, family members, caregivers and professionals.

Duration: 13 ms, Number of Results: 45

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Urinary Retention

Author: Agni Vlahos, MD and Brian Chicoine, MD - Family Medicine

Key Points Urinary retention is the build-up of excessive urine in the bladder. It appears to be more common in people with Down syndrome. A common reason for urinary retention in people with Down syn

Urinary Tract Infections (UTIs)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Urinary tract infections (UTIs) are infections of the urethra, bladder, ureters, and/or kidneys. People with Down syndrome have risk factors for getting a UTI due to issues related to not e

Urinary Incontinence

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Urinary incontinence or urinary "accidents" are more common in people with Down syndrome. There are many potential causes.  The inability to empty the bladder com

Common and Uncommon Health Conditions in Adolescents and Adults with Down Syndrome Webinar Recording (3/28/2024)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, on March 28, 2024. Description:  Some health conditions such as thyroid disorders and sleep apnea are mor

The LowDown: A Down Syndrome Podcast

Author: Marla Folden and Hina Mahmood - Down Syndrome Resource Foundation

The LowDown: A Down Syndrome Podcast   The LowDown is a podcast hosted by Marla Folden and Hina Mahmood of the Down Syndrome Resource Foundation in Canada. They "welcome Nor

Connective Tissue and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Connective tissue is the tissue that helps hold our bodies together. Connective tissue is different in people with Down syndrome compared to others.  People with Down syndrome have

Pneumonia in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Lungs are vital organs in the movement of oxygen into the body and the removal of carbon dioxide. Pneumonia is an infection of the lungs. Pneumonia is more common in people with Down syndro

Temperature Regulation in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points  How the body manages (regulates) body temperature is different in people with Down syndrome compared to people without Down syndrome. The difference in body temperature regulation

Pain in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points People with Down syndrome experience pain but some individuals report it less often than people without Down syndrome. There are a variety of reasons why people with Down syndrome may repor

Working with Healthcare Providers: Giving a Voice and Supporting Adults with IDD Webinar Recording

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Brian Chicoine, MD, presented a webinar called "Working with Healthcare Providers: Giving a Voice and Supporting Adults with Intellectual and Developmental Disabilities" on October 5

At-Home Treatments for Common Health Conditions of People with Down Syndrome Webinar Recording (9/13/2023)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, on September 13, 2023. In this webinar, Dr. Chicoine describes common health conditions experienced by people with Down syn

Gastroesophageal Reflux Disease

Author: Allison Schnitzler, MD and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Gastroesophageal reflux disease (GERD) is also known as heartburn or reflux. GERD is common in people with Down syndrome (DS). There are a variety of things that can be done at home to redu

Celiac Disease

Author: Robert Campbell, DO and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Celiac disease is caused by a sensitivity to gluten. It is more common in people with Down syndrome. It can be diagnosed through an assessment including a history, physical, blood work, and

Cerumen Impaction (Ear Wax Buildup)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Cerumen impaction is obstruction of the ear canal with ear wax. It is a problem that is more common in people with Down syndrome. There are treatments that can be done at home to prevent an

Down Syndrome Podcast Series for Parents, Educators, and Medical Professionals

Author: Down Syndrome Center of Western Pennsylvania - UPMC Children's Hospital of Pittsburgh

The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi

Hearing Loss in Adults with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Overview of hearing loss Hearing involves several steps as the sound passes from the ear to the brain. The ear is divided into three parts: the outer, middle, and inner ear. Hearing impairment, which

Cholesteatomas

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What are cholesteatomas? A  cholesteatoma is a collection of skin cells that become more fibrous and build up in the middle ear (where the small bones are that are part of our hearing mechani

Proprioceptive Input

Author: Katie Frank, PhD, OTR/L - Occupational therapist, Adult Down Syndrome Center

Many individuals with Down syndrome (DS) experience difficulty with their proprioceptive system. The proprioceptive sensors in our body are responsible for providing feedback so we know where our body

Global Medical Care Guidelines for Adults with Down Syndrome

Author: Medical Care Guidelines for Adults with Down Syndrome Workgroup - Global Down Syndrome Foundation

On October 20, 2020, the Global Medical Care Guidelines for Adults with Down Syndrome were published in the Journal of the American Medical Association (JAMA)  in an article called "

Benefits of Visual Supports Video

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Visuals can assist people with and without Down syndrome in many ways. We do not think that they are something that we "outgrow." In fact, many of us use visual supports (such as app

Constipation in Down Syndrome

Author: Samantha Ghanayem-Bouikidis, MD and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Video Watch a video clip about constipation  from our webinar At-Home Treatments for Common Health Conditions.   Constipation is a common problem in people with Down syndrom

Using First/Then Boards

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

We like to use visual supports to set or manage expectations. One type of visual support that can be helpful is a first/then board. When using a visual support, there can be words, pictures, or a comb

Tips for a Sensory-Friendly Haircut

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

While many find a trip to the salon or barbershop relaxing and look forward to their new look, getting a haircut can be an uncomfortable and even frightening experience for those with sensory

Sensory Processing Strategies to Promote Mental Wellness in People with Down Syndrome Webinar Recording (5/11/2022)

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L of the Adult Down Syndrome Center. Dr. Frank is an occupational therapist at the Center. In the webinar, she describes

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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