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For people with Down syndrome, family members, caregivers and professionals.
Duration: 47 ms, Number of Results: 45
When Things in My Life Change This visual story discusses how to manage changes that may occur throughout our lives. Additional visuals are available in the Transitions
When Staff Members Leave This visual story explains why staff members may leave their job, how we might feel, and how to cope with the change. Additional visuals are available in the&nb
The visual below explains how we might feel when someone we care about dies and shares things we can do to help us cope. Coping with Grief &nb
This visual explains what happens when a pet dies and how it might make us feel. When a Pet Dies Other visuals are available in the Grief and Loss section of our Resource Library
Are you a health professional looking for information on providing care for individuals with Down syndrome? The Down Syndrome Medical Interest Group-USA offers several options to support you
The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi
Abstract Background: Persons with Down syndrome (DS) experience an increased risk of pneumonia. We determined the incidence and outcomes of pneumonia and relationship to underlying comorbidi
The story linked below talks about moving to a group home, including how to deal with new emotions and managing a schedule. Moving to a Group Home The story was created
Abstract Down syndrome (DS) or trisomy 21 is a genetic condition often accompanied by chronic pain caused by congenital abnormalities and/or conditions, such as osteoarthritis, recurrent infections, a
This Getting an EEG visual explains what happens when we have an electroencephalogram (EEG) done. It can help individuals with Down syndrome know what to expect when going for an EEG. Additi
Abstract In adults with Down syndrome, the combination of low physical activity and fitness levels and the high prevalence of musculoskeletal co-morbidities stresses the need for specialized exercise
On October 20, 2020, the Global Medical Care Guidelines for Adults with Down Syndrome were published in the Journal of the American Medical Association (JAMA) in an article called "
In April 2022, a clinical report was published in Pediatrics , a publication of the American Academy of Pediatrics. These pediatric guidelines are "designed to assist the p
Moving our bodies throughout the day can help us be healthy.
Abstract Individuals with Down syndrome (DS) have an increased risk for epilepsy during the whole lifespan, but especially after age 40 years. The increase in the number of individuals with DS living
Abstract Purpose: Given the current life expectancy and number of individuals living with Down syndrome (DS), it is important to learn common occurrences of disease conditions across the dev
Use this handout to create a workout by spelling your name, the day of the week, or another word or phrase of your choosing!
School of Strength is a Special Olympics program that provides videos with endurance, strength, and balance exercises. The program also offers a Fitness Tracker, Caregiver Kit, and Coaches Playbook.&a
Abstract Importance: Down syndrome is the most common chromosomal condition, and average life expectancy has increased substantially, from 25 years in 1983 to 60 years in 2020. Despite the u
Abstract Pneumonia and respiratory infections impact infants and children with Down syndrome; pneumonia is a leading cause of mortality in adults with Down syndrome. We aimed to review the literature
Abstract Down syndrome, also called Down’s syndrome (DS), is the most common chromosomal condition associated with intellectual disability and is characterized by a variety of additional cli
Abstract Some chronic diseases - such as the rare bone disease X-linked hypophosphatemia, the impetus for a study reported within Volume 7, Issue 2 of the Journal of Patient-Centered Researc
Abstract Adults with Down syndrome (DS) represent a unique population who are in need of clinical guidelines to address their medical care. Many of these conditions are of public health importance wit
This handout talks about death. It describes what it is and how it might make us feel.
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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