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For people with Down syndrome, family members, caregivers and professionals.

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Alzheimer's Disease & Down Syndrome: A Practical Guidebook for Caregivers

Author: National Down Syndrome Society - Resource

The guidebook linked below was published by the National Down Syndrome Society "to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer

Healthy Eating at Buffets Video

Author: Adult Down Syndrome Center - Video

Making healthy choices at a buffet can be challenging. In this video, Carly and Tyler explain and demonstrate helpful tips to address this challenge. The tips in this video also apply to potlucks, fam

Grains Video

Author: Adult Down Syndrome Center - Video

As described in the USDA MyPlate program   , grains are an important part of a healthy plate. This video on grains is the second part of our "Cooking Well and Feeling Well at the Adu

Fruits and Vegetables Video

Author: Adult Down Syndrome Center - Video

As described in the USDA MyPlate program   , fruits and veggies are an important part of a healthy plate. This video on fruits and veggies is the first part in our "Cooking

Clinical Aspects and Biomarkers of Alzheimer's Disease in Down Syndrome

Author: Zis & Strydom - Free Radical Biology & Medicine (2017)

Abstract Alzheimer's disease (AD) may affect in excess of 90% of individuals with Down syndrome (DS) after age 60, due to duplication of the APP gene in trisomy of chromosome 21, with neuropat

Dying Well with an Intellectual Disability and Dementia

Author: Service et al. - Journal of Dementia Care (2017)

Abstract Collaboration between palliative care, dementia care, hospice provision, and intellectual disability services is required rather than any one of these systems working in isolation. This is ne

Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

1. Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever they are, are normal and they are not alone. It can help just t

Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

Healthy Pace for Eating Video

Author: Adult Down Syndrome Center - Video

Eating too fast can cause us to get a stomachache, cough, or even choke. If we eat more slowly, we can enjoy our food and be healthier. This video talks about a healthy pace for eating snacks and meal

Hydration Video

Author: Adult Down Syndrome Center - Video

Drinking plenty of water helps us stay healthy. In this video, Julia talks about the importance of hydration and how to keep hydrated.  Learn more in our Tips for Staying Hydrated resource.

Low Risk of Solid Tumors in Persons with Down Syndrome

Author: Hasle et al. - Genetics in Medicine (2016)

Abstract Purpose:  The aim of this study was to investigate cancer incidence in a large cohort of persons with Down syndrome.  Methods:  Down syndrome was identified from th

Healthy Food and Drink Choices Video

Author: Adult Down Syndrome Center - Video

Some food and drink choices are healthier than others. In this video, Molly and Peter help us identify the healthier choice between two food or drink options. A corresponding visual handout can be fou

Breast Cancer Screening for Women with Down Syndrome

Author: Chicoine et al. - Intellectual and Developmental Disabilities (2015)

Abstract This study examined mammogram reports of women with Down syndrome (DS) treated in the largest medical facility specifically serving adults with DS in the United States. Records of 684 women a

Jenny's Diary: A Resource to Support Conversations about Dementia with People who have an Intellectual Disability

Author: Karen Watchman, Irene Tuffrey-Wijne, & Sam Quinn - University of Stirling

The resource linked below is a free to download booklet and set of postcards aimed at supporting conversations about dementia with people who have an intellectual disability. Access the Booklet &n

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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