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For people with Down syndrome, family members, caregivers and professionals.
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The resources in the Families and Caregivers section of our Resource Library are intended for a broad audience of parents, siblings, friends, and caregivers of individuals with Down
This Getting Ear Wax Removed Visual explains what happens when we get our ears cleaned out. This visual can help individuals with Down syndrome know what to expect when g
This Getting an Ultrasound Visual explains what happens when we get an ultrasound. This visual can help individuals with Down syndrome know what to expect when going for
Visuals can help individuals with Down syndrome prepare for and know what to expect at medical appointments. Our Resource Library has several examples. Visits to the Doctor &n
Recently, we were asked about emergency preparedness and safety resources for people with Down syndrome. We started to research the topic and found numerous resources that may be helpful to people wit
Just thinking about chores can make us want to groan but doing chores can be beneficial for our physical and mental health. Doing chores is one way to incorporate more physical activ
Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfami
Becoming more independent is a goal for many adolescents and adults with Down syndrome. This goal may vary significantly from person to person. It can range from wanting to become more independent wit
This Getting an X-Ray visual explains what happens when we get an x-ray. This visual can help individuals with Down syndrome know what to expect when going for an x-ray. A
This Getting an EEG visual explains what happens when we have an electroencephalogram (EEG) done. It can help individuals with Down syndrome know what to expect when going for an EEG. Additi
This Getting My Blood Drawn visual explains what happens when we have a blood test done. This visual can help individuals with Down syndrome know what to expect when goi
Abstract Scant research has explored the healthcare experiences of people with Down syndrome (DS) in the United States who are Black, African American, of African descent, or of mixed race. The purpos
Brian Chicoine, MD, presented a webinar called "Bias in the Health Care System: Advocating for People with Down Syndrome" on October 19, 2022. The webinar was hosted by LuMi
There are four main factors to consider in a discussion of anesthesia in people with Down syndrome (DS): Anesthesia can be an important part of good health care at times. Many people
The fact sheets linked below share estimates of the numbers of babies born and people living with Down syndrome in the United States and Europe. USA Fact Sheet Last updated Novemb
This visual support explains what to expect when you go to a doctor's appointment.
Respite care is short-term relief for primary caregivers. It can be used for as short as a few hours to as long as several weeks. Respite care can be provided in a variety of settings including the in
The list below includes information about respite organizations and providers in the greater Chicagoland area and/or Illinois. The types of respite provided are also included: In-Hom
The Adult Sibling Toolkit from the National Down Syndrome Congress is a tool for adult siblings who are preparing to become more involved in the support and care of their loved ones with Down syndrome
Individuals with Down syndrome can use this handout before, during, and after health appointments to help them advocate for their health.
On December 14, 2021, the Down Syndrome Association of Delaware hosted a webinar called, "Traveling the Road Towards Independence." The presenter was Lina Patel, PsyD. View recording
Do you or does a family member or friend with Down syndrome dread getting blood drawn? Here are some tips to help with blood draws: Make sure to be hydrated! This will help the phle
This health passport can be filled out by individuals with Down syndrome and their families to share information with health care professionals about how they can best support the individual.
The Family Care Toolkit linked below is a resource created by the National Down Syndrome Congress with the support of the Global Down Syndrome Foundation. It helps families and primary caregivers gath
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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