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For people with Down syndrome, family members, caregivers and professionals.
Duration: 14 ms, Number of Results: 65
When Things in My Life Change This visual story discusses how to manage changes that may occur throughout our lives. Additional visuals are available in the Transitions
When Staff Members Leave This visual story explains why staff members may leave their job, how we might feel, and how to cope with the change. Additional visuals are available in the&nb
Abstract Background: Down syndrome is the most common genetic cause of intellectual disability and Alzheimer's disease. In the general population, common mental disorders (CMDs), inc
Are you a health professional looking for information on providing care for individuals with Down syndrome? The Down Syndrome Medical Interest Group-USA offers several options to support you
The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi
Evaluating Challenging Behaviors in Adults with Down Syndrome is a resource for health care professionals developed by the Down Syndrome-Autism Spectrum Disorder Workgroup of the
Learning how to manage our stress in healthy ways is a lifelong process. We have compiled a list of resources below that may help people with and without Down syndrome who are workin
The story linked below talks about moving to a group home, including how to deal with new emotions and managing a schedule. Moving to a Group Home The story was created
Abstract Down syndrome (DS) or trisomy 21 is a genetic condition often accompanied by chronic pain caused by congenital abnormalities and/or conditions, such as osteoarthritis, recurrent infections, a
The handouts linked below were developed to teach individuals with Down syndrome how to think more positively. If an individual has an automatic negative thought (or ANT), they can squish it or brush
There are many things that might make us feel stressed. My Stress Triggers gives examples of things that might make us feel stressed. What causes you to feel st
Coping with stress is an important and necessary part of life. There are some strategies that can help us manage our reactions to different life stressors. The steps below are strategies that I use wi
On October 20, 2020, the Global Medical Care Guidelines for Adults with Down Syndrome were published in the Journal of the American Medical Association (JAMA) in an article called "
When we talk about emotions during our social skills groups for adolescents and adults with Down syndrome, we explain that it is ok to feel any emotion; however, it is not ok to have negative
This visual handout shares activities you can do to help yourself calm down.
"I" statements are a way to share how we feel in a clear, calm, and respectful way. The handouts pictured below explain the components of "I" statements. There is a
In April 2022, a clinical report was published in Pediatrics , a publication of the American Academy of Pediatrics. These pediatric guidelines are "designed to assist the p
Abstract We aimed to evaluate the safety and immunogenicity of the BNT162b2 vaccine in young people with Down syndrome (DS), and to compare their humoral immune response with those of the healthy cont
Abstract Findings from a recent study of the largest documented cohort of individuals with Down syndrome (DS) in the United States described prevalence of common disease conditions and strongly sugges
Abstract A recent disease prevalence study of the largest documented Down syndrome (DS) cohort in the United States strongly suggested significant disparity in general infectious disease conditions am
Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below. VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine &a
Abstract Purpose: Given the current life expectancy and number of individuals living with Down syndrome (DS), it is important to learn common occurrences of disease conditions across the dev
The PDF linked below is a copy of the second edition of Dr. McGuire and Dr. Chicoine's book originally published by Woodbine House Publishing in 2021. After Woodbine closed in 2022, the publis
Abstract Importance: Down syndrome is the most common chromosomal condition, and average life expectancy has increased substantially, from 25 years in 1983 to 60 years in 2020. Despite the u
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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