Section Heading Background Image

Search our Resources

For people with Down syndrome, family members, caregivers and professionals.

Home Resources

Duration: 13 ms, Number of Results: 51

Showing 1 - 24 of 51
1 2 3 Next Last Page 1 of 3
item name

How to Put Your Hair into a Ponytail Video

Author: Kayla Millan, OTS and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The video below demonstrates one way of putting your hair into a ponytail.  See the  Self-Care and Hygiene  section of our library for additional resources.   Royal

item name

Menopause Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below describe menopause and symptoms of menopause that women may experience. There are versions for lighter and darker skin. All menopause visuals Darker skin Lighter skin &nbs

item name

Create a Getting Dressed Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The images and template below can be used by individuals with Down syndrome and their families to create a visual showing the clothing that they should put on when getting dressed.  Instructi

item name

Down Syndrome Medical Interest Group-USA (DSMIG-USA) Resources

Author: Down Syndrome Medical Interest Group-USA - Resource List

Are you a health professional looking for information on providing care for individuals with Down syndrome? The Down Syndrome Medical Interest Group-USA  offers several options to support you

item name

Story About Getting My Period

Author: Katie Frank, PhD, OTR/L

This visual explains what happens when a woman gets her period.

item name

Story About How to Change My Tampon

Author: Katie Frank, PhD, OTR/L

This visual explains how to change a tampon when a woman has her period.

item name

Story About When to Change My Menstrual Hygiene Product

Author: Katie Frank, PhD, OTR/L

This visual explains that women need to change their pad, tampon, or period panties throughout the day when they have their period.

item name

Story About How to Change My Period Panties

Author: Katie Frank, PhD, OTR/L

This visual explains how to change period panties when a woman has her period.

item name

Story About How to Change My Pad

Author: Katie Frank, PhD, OTR/L

This visual explains how to change a pad when a woman has her period.

item name

Down Syndrome Podcast Series for Parents, Educators, and Medical Professionals

Author: Down Syndrome Center of Western Pennsylvania - UPMC Children's Hospital of Pittsburgh

The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi

item name

Personal Hygiene Chart

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The Personal Hygiene Chart linked below can help us keep track of when we complete hygiene tasks such as taking a shower, brushing our teeth, and caring for our nails. Not all hygien

item name

Brushing Teeth Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals under the headers remind us of the steps for brushing our teeth. Tap or click on the headers to find printable versions for electric and manual toothbrushes. There are also versio

item name

Using the Toilet Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals under the headers can help us remember the steps for using the toilet. Tap or click on the headers to find printable versions for girls/women and boys/men. There are also versions

item name

Perspectives on Pain in Down Syndrome

Author: Shaikh et al. - Medicinal Research Reviews (2023)

Abstract Down syndrome (DS) or trisomy 21 is a genetic condition often accompanied by chronic pain caused by congenital abnormalities and/or conditions, such as osteoarthritis, recurrent infections, a

item name

Global Medical Care Guidelines for Adults with Down Syndrome

Author: Medical Care Guidelines for Adults with Down Syndrome Workgroup - Global Down Syndrome Foundation

On October 20, 2020, the Global Medical Care Guidelines for Adults with Down Syndrome were published in the Journal of the American Medical Association (JAMA)  in an article called "

item name

Create a Showering or Bathing Routine Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The images and template below can be used by individuals with Down syndrome and their families to create a visual showing the steps of their showering or bathing routine.  Instructions &n

item name

Health Supervision for Children and Adolescents with Down Syndrome

Author: Bull et al. (2022) - Pediatrics (American Academy of Pediatrics Publication)

In April 2022, a clinical report was published in  Pediatrics , a publication of the American Academy of Pediatrics. These pediatric guidelines are "designed to assist the p

item name

Story About Grooming/Hygiene for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

item name

Story About Grooming/Hygiene for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

item name

Menstruation (Period) Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About Getting My Period   Story About How to Change My Pad   Story About How to Change My Tampon   Story About How to Change My Period Panties   Story About W

item name

Prevalence of Infectious Diseases Among 6078 Individuals with Down Syndrome in the United States

Author: Fitzpatrick et al. - Journal of Patient-Centered Research and Reviews

Abstract A recent disease prevalence study of the largest documented Down syndrome (DS) cohort in the United States strongly suggested significant disparity in general infectious disease conditions am

item name

Pelvic Exam Social Story

Author: PA ASERT and SexEdVA - Resource List

The social stories linked below are intended to help individuals with Down syndrome and other developmental or intellectual disabilities prepare for and feel more comfortable with getting a pelvic exa

item name

Prevalence of Common Disease Conditions in a Large Cohort of Individuals with Down Syndrome in the United States

Author: Chicoine et al. - Journal of Patient-Centered Research and Reviews (2021)

Abstract Purpose:  Given the current life expectancy and number of individuals living with Down syndrome (DS), it is important to learn common occurrences of disease conditions across the dev

item name

Medical Care of Adults with Down Syndrome: A Clinical Guideline

Author: Tsou et al. - JAMA (2020)

Abstract Importance:  Down syndrome is the most common chromosomal condition, and average life expectancy has increased substantially, from 25 years in 1983 to 60 years in 2020. Despite the u

Showing 1 - 24 of 51
1 2 3 Next Last Page 1 of 3
 

 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

Ask a Question

Join Our Email List Opens in new window

Close